This May Be Silly, But How Many Of You Dislike Other Social Networks Because You've Lost Your Tolerance For So-called "perfect" Friends? | MyAutismTeam

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This May Be Silly, But How Many Of You Dislike Other Social Networks Because You've Lost Your Tolerance For So-called "perfect" Friends?
A MyAutismTeam Member asked a question 💭

I just wish they had an ounce of perspective... Am I alone in this? Maybe I need therapy...

posted March 5, 2012
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A MyAutismTeam Member

@evak77 I hear you loud and clear! I got so fed up one day I wrote this note on FB and sent it to all my friends. I re-posted it on my blog. I'd love to hear what you think:
http://findingpeaceinthepuzzle.blogspot.com/201...

posted March 6, 2012
A MyAutismTeam Member

wow... I can't believe someone has actually SAID this! I don't avoid social networks, exactly, but I did start to avoid my own friends. They try to be understanding, but I see their perfectly clean houses and the perfect loving husband working the perfect 9 to 5 job...the moms are at home with perfectly behaved angels learning Greek and Latin in their advanced homeschool co-ops... no one is allowed to say "butt" or "stupid" and the parents can go on mini vacations while doting grandparents fight over who gets the little blessings for the weekend. What planet is this? How did all of my friends get there?

posted March 20, 2012
A MyAutismTeam Member

Unfortunately in the social network and in real life. Autism shows your "friends" true colors...

posted March 6, 2012
A MyAutismTeam Member

I think it just shows you that people who do not go through what we do just do not have a clue as to how hard it is to have autistic children. I posted a responce on huffington post to an article where a woman clearly had an autistic child who was having meltdowns, and did not want to be at school. She had taken the child to a few different doctors and they have not come up with a clear diagnosis, and the school will not provide services without one as we all know, All these normal parents were just commenting on how you should not let your child be labled, and when I suggested what I just said about having to have one for services the hate email came. I do not wish another child in the world ever really be autistic, but I do wish these parents or single people would have to deal with what we do for a while so they could get their heads straight

posted March 6, 2012
A MyAutismTeam Member

@A MyAutismTeam Member, I TOTALLY agree with you!!! @KarenGinny, I know at the end of my life, I will have NO regrets when it comes to my son because I have done all I can in his best interest. Many of our decisions as a family have cost us not just financially but emotionally and physically. This is why I love this website and why I posted this question to begin with. Because our children are so complex we do have to notice every little nuance and that makes us know them better than any of my friends of family members know their kids. I've often been accused of being "too involved" with my son. I was starting to think maybe I was crazy and over-sensitive (as most people think I am) but after reading what all of you have said, it's just the nature of the "job" of being a parent of a child with ASD or any special needs for that matter! I'm reading Eustacia Cutler's book "Thorn in My Pocket" (she's Temple Grandin's mom). It has really helped put my life into perspective. One thing she talks about is how so many of us lose our identities to our children's disabilities and how we really have to try not to get totally lost. Remember who you are deep inside and try to go there in your mind whenever you can. She took singing lessons and had counseling... that's to what she attributes her ability to stay sane while raising Temple in a whole other time and era, one during which not only was autism not "acceptable," it was completely misunderstood and SHE was being blamed for making her daughter the way she was. My clothes may not be as nice or pretty as they were before my world was thrown into this new path, but every day now I try to wear something colorful and put on some jewelry (even if it's costume jewelry-- today I'm wearing small rhinestone studs that I got at Claire's for like $5 for a wedding a few years ago). Even putting on a little bit of lip gloss makes me feel like I'm still a woman and not just "Nathan's mom." We also have an older car and don't live in the best of the cities in the area, but that's what we have to do! I'm so glad you are all here with me!!!!!!!!!!!!!!!!!!!!!!!!!
Blessings!
Deb

posted March 22, 2012 (edited)

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