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What's the one thing you most wish other people understood about kids with autism?

MyAutismTeam asked a question 💭
San Francisco, CA

As we continue our efforts to raise awareness about autism to the public, we would love your help answering this question!

February 13, 2013
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Answer Summary

Members shared a powerful consensus that the most important thing people need to understand is that autism is not a tragedy, a death sentence,... Read more

Members shared a powerful consensus that the most important thing people need to understand is that autism is not a tragedy, a death sentence, or something contagious, but rather a different way of thinking and experiencing the world that deserves patience, acceptance, and celebration rather than judgment or pity. Several members expressed frustration with being blamed for their children's behavior, facing stares and assumptions in public, dealing with unsupportive family members in denial, and navigating schools and teachers who lack proper training, while emphasizing that their children have deep feelings, unique personalities, incredible strengths, and immense capacity to love even when they struggle to communicate it in typical ways. A recurring theme was the plea for people to stop talking about or around individuals with autism as if they aren't present or don't understand, to recognize that looking 'normal' doesn't mean challenges don't exist, and to remember that autism is a lifelong condition requiring ongoing support, not something children will simply 'grow out of' or that reflects poor parenting.

A MyAutismTeam Member

For me personally , I wish people( particularly family members) would want to learn about autism. There is unfortunately alot of judgement and assumption placed before questions are asked. Because my son looks "normal" people just assume he will magically just be I fine nd this is because they have chosen not to educate themselves.
I would like to share my day to day life with people to show our struggles.with tasks that most people simply take for granted because their child just naturally does them and I would like to share amazing victories and how beautiful these moments are.
Autism is not the end of a child's life.i have come to realize through my own personal acceptance how amazing my child is who has autism and that developmentally he may not be where he is supposed to be according to a piece of paper but he will get there in his own time.Our children learn on their own timeline and this needs to be accepted ,embraced and supported by those who are around us.
Our children our truly beautiful, unique, inspirational individuals.. This is what I wish people old recognize!!!!

February 15, 2013
A MyAutismTeam Member

I think that people need to understand that ASD children cannot help doing what they are doing, and they are not just children misbehaving. I would also want them to know that we are not bad parents letting our children run amuck in public.

I would want people to understand that having ASD children is very difficult, and we all do the best we can. I want people to know we have to put a lot of effort into our children and we often go without so that our children have the best care possible.

February 14, 2013
A MyAutismTeam Member

That just because my HFA son looks normal and is quite articulate, doesn't mean he can do everything expected of him. There are so many hidden deficits. If I hear one more teacher say, "I don't know why he can't take the test, he's so SMART!" I will scream.

February 14, 2013
A MyAutismTeam Member

That no, he doesn't just need a "good beating!" That this world is a little overwhelming for him at times and he is telling me that by screeching.

February 19, 2013
A MyAutismTeam Member

Having been a teacher/researcher of children who have ASD's, my wish would be that parents and teachers actually study the neuroscience research on the brains of persons with autism. Two particular areas to look at are underconnectivity in the brain and motor processing difficulties. The motor processing aspect is vastly underestimated in autism and yet it has an impact on every aspect of performance, particularly communication and social interaction. Think about the simple act of smiling - if processing of the facial muscles is not "hard-wired" then smiling will be a learned process. The observation and practice sessions that a child would need to be able to imitate that action may be in the hundreds - again, each person is different, but there cannot be an on-going gross underestimation of how many times a child or student must watch or do something in order to embed the learning. Often, instructors and parents give up because skill acquisition seems to be taking too long.
Frankly, I have met so many teachers and parents who have not taken the time to really research this disorder that is overwhelming their child's and their own lives, leaving it to others - doctors, therapists, etc. Go to Google Scholar and just do it!

February 21, 2013

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