Does anyone know about Pitt-Hopkins-Like 2 Syndrome and where we can get more information about it? Our 4 1/2 year old granddaughter has had genetic testing and this was the diagnosis they gave. We would like to talk to more families who know and have experience with this syndrome.
Thank you. Sounds like a good idea. We have gone in and Liked their FB page. Funny how complicated some things seem that should be so simple.
Thank you. Yes, we just learned about that site yesterday but there's not much on it about Pitt-Hopkins-Like 2 syndrome. I guess it's even more rare than the regular Pitt-Hopkins Syndrome. Just not much information out there that we can find. Thanks for your assistance, though.