Medication is not working any more...cant seem to find ONE that works at all. Curious to know if various other treatments have worked for anyone else. Desperately looking for other options
Make sure you do your homework before deciding to try any biomedical treatment because not all of them have scientific evidence to support their effectiveness. We see an integrative neurodevelopmental pediatrician who is a professor at UC San Francisco. He follows some, but not all, of the DAN protocol. In particular, he disagrees with chelation and hyperbaric oxygen because he does not think they have a favorable risk/potential benefit ratio. He mainly relies on nutritional support but he does use some pharmaceuticals like Nystatin for yeast treatment and Oxytocin nasal spray.
There are DAN doctors who use biomedical and medical approach. Some of these have also shown efficacy in double blind published studies. A regular pediatrician won't like use this approach as these are still in research. For example, there is a prescription PS bonded fish oil called Vayarin that is indicated for ADHD. Your doctor likely hasn't heard of it but worth asking / looking into it. I've heard of some parents getting prescription for it from their neurologist and pediatrician but need to make them aware.
ok....so do i bring it up to his pediatrician or do i bring it up w/his psych?
Oh yes !!! I'm seeing a pediatric DO doc who helps alot using alternative but scientific medcine. after all, even the mainstream science proves, for ex, that NO prozac-like drugs (SSRI) work on autistic kids or adults. And yet that was the first thing the autism specialists at our children's hospital wanted to put our anxious kids on. Turmeric extract (curcumin) is better at treating anxiety, and its a safe spice. Our health insurance covers it from Silsby with a docs prescription. Also use fish oil or other omega oils for depression. I've used vitamin e for social stuff, and PC as well, particularly if your child is a butter eater. Good DOs are out there. I also read What's Eating Your Child and found that helpful. Finally, food allergies really made behavior worse for my kids. It took me a long time to take the plunges, b/c the oldest ONLY ate peanut butter sandwiches, crackers and soy nut butter, milk, and cereal, and hummus, and he was allergic to milk, wheat, peanut butter, soy, and gluten (which is in most cereals). But he is doing so much better off all that. It's hard but worth it. I'm about to take my younger one off wheat even tho he doesn't test as allergic just to see if there is a diff. There is NO test that predicts how a human reacts to eliminating food. You just have to try.