Anyone Had A Diagnosis Of ASD For Thier Child But Due To DSM And Improvment Through Interventions Will Lose Thier Diagnosis Of ASD? | MyAutismTeam

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Anyone Had A Diagnosis Of ASD For Thier Child But Due To DSM And Improvment Through Interventions Will Lose Thier Diagnosis Of ASD?
A MyAutismTeam Member asked a question πŸ’­

My 5 year old went from speaking only 5 words at age 2 then spending the next three years with intensive therapies; OT, SP, PT, wrap-around behavior services, Social skills groups, various diet changes, supplements, and therapy based preschool. He will start mainstream kindergarten on Monday with only speech support and speech delay on his IEP since they did not see any ASD behaviors/issues during their evaluations. His wraparound team is recommending reduced hours and suggested he will lose the… read more

posted August 22, 2013
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A MyAutismTeam Member

Fortunately for us the state of Massachusetts has decided that the changes in DSM will not affect the services any child on the spectrum gets. We found out the other day by my daughters program releasing the news through their website and sent it out to all of the parents.

I wish all of the states would be the same but unfortunately they won't . I know I have said this many times in messages but it is very important to be in the best place for your child. We moved five states away and gave up jobs for it but it had to be done to ensure their care.

posted August 23, 2013
A MyAutismTeam Member

Remember a 504 is very different than an IEP so if the school is pushing for that insist on the IEP instead because you will get more with the IEP, however it does depend on diagnosis in some states so that is important as well.

As an example in some states the diagnosis of PDd-NOS is a 504 whereas the diagnosis for ASD is an IEP. Some inexperienced dr's use the PDD because they are not sure what to classify the child, and with the changes to the DSM-5 you are not going to get what you need.

The other thing is that you can request a meeting with the team if your child is having issues with the curriculum, some states it is 60 days and some it is 30, in ours it is 30 so if we see a change we request an IEP meeting to address the issue. They not voluntarily just offer you things unless you push them in a lot of places so you have to be proactive. Fortunately for us we live in a good state and the district also knows we do not back down so they actually bring things to our attention before we say anything now.

posted August 25, 2013
A MyAutismTeam Member

Yes I would ask the school to evaluate him with an outside evaluator. That is your rig.
Congrats on your success. I am envious and shocked. What more should I be doing for my kids?!

posted August 24, 2013
A MyAutismTeam Member

Well, everyone that has Asperger's, which is quite a few. Personally, my son has high functioning autism so it doesn't affect me, but if I were diagnosed with Asperger's I would see the Dev Ped or Psychologist and get a current corrected diagnosis and letter to support him.

posted August 23, 2013
A MyAutismTeam Member

Next Wed. I will find out what the wrap around service will do but the MT is asking me to prepare for a cut of services and drop of ASD diagnosis. Great. No problem. Just one thing, my son isn't doing supper well. Actually we have had a regression enough for him to be seen with the guidance counselor and nurse several times since last week. He was sent home after getting intestinal virus that hit him. He was so OCD about getting sick again at school refused to go back. We forced him to this week so he's needed lots of support and perservates every morning and night about it. Crying as he walks into school. He continues to have meltdowns but they are lessening instead turning more aggressive towards his sister. And I've witnessed his socialization at school a little. Kids don't really want to play with him much. They ignore him as he tries to talk to them. He's not eating at school much. His home therapists aren't even helping much with him. Just sits there and plays the board games waiting for him to meltdown when he doesn't win.

posted September 13, 2013

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