School here starts September 2, he will be going into 2nd grade after repeating the first grade with the same teacher. The decision to hold him back was purely mine. So he will be going into a new grade, with a new teacher, in a new building (they just built a brand new school building and it is awesome!) It is a lot of unknowns for him, which will lead to behavior issues. He has been on an IEP for 5 years now and every year the services are reduced. The IEPs in the past have been with a… read more
Since he has a serious medical condition yes I would get the nurse involved. Yes I would contact the school as soon as the open and ask to meet for IEP meeting as soon as possible. (maybe even before school starts if you are lucky, so when school starts everything new starts the n instead of a month or 2 down the road). I would have an advocate there if you can. The more people who know your child and can tell the school about your child the more I would hope the school would be to help you. My understanding there is no limit on the number of people you have helping you. The school might hmmjot Luke what they hear or have to do but it is your child's rights. Good Luck. Lots of huggs your way.
No, his worker is another therapist for him. He comes to our house once a week and we decide as a team what needs to be worked on. We are currently focusing on listening and appropriate social interactions. Michael has no concept of personal space and will get right up in people's faces and roar at them like Godzilla. Michael will then leave with his worker and go out into the community. They go swimming (Michael's favorite), bowling, shopping, ect to practice these skills. They then come home and we discuss what happened and how he did. I am given ideas to implement at home to help. His CBRS worker works closely with his play therapist.
CBRS stands for Community Based Rehabilitation Services. It used to be known as PSR, and I don't remember what that stands for.
@A MyAutismTeam Member we have not hired a parent advocate, we are now recieving Case Management from his CBRS worker. He will be a part of the IEP team from this point on.
I am not sure it matters how early you have the IEP meeting, as long as they work with you to get the services you need. In my opinion, it is important to establish goals before the placement is decided, because that lends the placement toward "general classroom with support" rather than the other way around.
If you have specific requests, or if the school has a history of saying "it can't be done", then you might want to have an early meeting, so you can make your requests in writing. Even If they work with you pretty well, and you feel they are addressing your concerns, you still might want to make requests in writing if you feel they are cutting too many services. This forces them to respond in writing, which gives you more information if you have to go back and make the same request again.