It Can't Be Autism Because "She Has Made Progress." And Why Is A Diagnosis Not Important? | MyAutismTeam

Connect with others who understand.

sign up Log in
Resources
About MyAutismTeam
Powered By
Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
It Can't Be Autism Because "She Has Made Progress." And Why Is A Diagnosis Not Important?
A MyAutismTeam Member asked a question 💭

I'm living in the Netherlands and for over a year now I have been fighting to get a diagnosis for my daughter other than ONLY selective mutism. I HIGHLY suspect autism and if not autism then sensory processing disorder. She has gotten play therapy so she could be evaluated. Time and time again I've been told "I don't think it can be autism because she shows progress." and every single time I respond with "Of course there is progress! She's in play therapy. Therapy helps with progress.". Also… read more

posted June 27, 2016
•
Be the first to like/hug
A MyAutismTeam Member

@A MyAutismTeam Member , Thank you. I am never going to give up on pushing for a diagnosis and proper treatment. I gave up on fighting for my daughter to stay in mainstream school. I now want a school who will understand her and parents are in a way bullying me and her now. However, I think no diagnosis and not getting the BEST treatments for her harms her.

posted June 30, 2016
A MyAutismTeam Member

@A MyAutismTeam Member, your daughter is beautiful. You know your child best and I think you have to trust your mom gut and keep pushing for evals from a behavioral pediatrician, child psychologist to see if it yields anything that complements your own observations?

posted June 28, 2016
A MyAutismTeam Member

Sorry Wse. I forgot to say thank you to you as well.

posted June 28, 2016
A MyAutismTeam Member

pammiepies, Thank you for the compliment. I am trying to find parents of children with autism or similar conditions who have similar views as mine. I been to the autism information and support group and even though they have been helpful with other things they are also agreeing that she's still young and takes time for a diagnosis. They also aren't pro mainstream schools for children with special needs. Not because they don't think their children should be equal to those children without special needs but because you have teachers and staff properly trained to help and teach children with special needs. Once my daughter is finally settled in a better school I am going to see if I can get any other mothers support to try to make it a law for mainstream schools to hire teachers and staffs that know how to cater to special needs. Try to get a law passed similar to the USA even though I have heard stories of schools not doing their jobs in the USA.

lynnrebecca, In my opinion Netherlands is generally pro child. However, they have their mind set on the so called "typical child" and when your child doesn't fit that things can become extremely difficult. Especially if you sent to a crappy specialist. The Netherlands provide a service to come to your home and help you the first week after giving birth so both mother and father can get the bond more easily. They will give tips if wanted such as how to breastfeed. They have a place you can go to once a week if you want to for the first 12 months. Most will choose to go once a week for only the first month with their first child. You can go with any concerns you might have. They had no training in looking forsigns of autism for the actual check up appointments. That started this year. My daughter has in her medical records lots of things that indicate at least sensory processing disorder. She had a physical therapist from one month to 18 months. I really like the physical therapist. It went down hill from there. I wasn't be directed to the right specialist. When I indicated I suspected autism I was eventually sent to this current clinic who doesn't even have a specialty in autism. Thank you for the links. I have found some on my own that turned out to be a dead end but I will check out the other links.

ChristineL, I actually finally found an autistic clinic with a good reputation near us so it looks like I can finally get a second opinion. I am assuming the house doctor will write the referral.

posted June 28, 2016
A MyAutismTeam Member

That's crazy!

My son started out as "PDD-NOS" and didn't get the "Autism" diagnosis until he was 4. He got help ALL along the way! He always makes progress. He doesn't qualify for ESY because of his "progress".

Are there advocates in your area or pro-bono attorneys to help with educational issues? You may have to reach out to some of the moms in your area and see what they say about their own ASD kids.

By the way, you baby girl is beautiful!

posted June 27, 2016 (edited)

Related content

View All
Angel Sense
A MyAutismTeam Member asked a question 💭
Behavior
A MyAutismTeam Member asked a question 💭
Looking For The Best Program For Adult With Autism In Northern Virgina
A MyAutismTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in