Where do you all draw support from (besides here). Respite care?? How do you let go of guilt over feeling like you’re enjoying things they can’t?? I’m attached to my son 24/7 & will always put his needs first but I know I have to recharge. I’ve given up on my hopes/dreams & although I’d like to find fulfillment, I just don’t see that happening & it’s hard to trudge on without some type of break here/there.
Ladies just be careful who you let watch your children.
The state has some programs. Easter seals and your local arc. Some churches have programs for kids with special needs. W all eyed time for ourselves, this can be a long journey❤️
Respite care sometimes. We have been out 3 times. Each for about 3 hours. Ashar seems to enjoy the company of his respite provider. But twice we went out for a late night movie date after putting Ashar to sleep. So that was mentally comforting for us.
I am like you too. I have 2more kids with my little one with Autism. No one to help us, I do everything every day. My husband is also not involved much. I can not enjoy things without him. so I sacrificed a lot.
I believe that is the life I got.