Connect with others who understand.

sign up log in
About MyAutismTeam

Why, When The Same Story Of Our Autistic Children's Suffering Is Told, Is There No Progress In The Treatment Or Prevention Of Autism ?

Why, When The Same Story Of Our Autistic Children's Suffering Is Told, Is There No Progress In The Treatment Or Prevention Of Autism ?

Does anyone agree with this. We can't make progress until we identify their problems. To help we need a National Database for Autism designed to split the spectrum into subsets and for each of these to be researched as a separate condition.
In the UK we need a Minister of State for Autism independent from the Health Ministry who have failed so miserably.

A MyAutismTeam Member said:

My son is unvaccinated. He was however exposed to a Rhogam shot in utero. Statistics do show clearly unvaccinated children are healthier and how much lower autism rates. Independent doctors have told me to be grateful he is not vaccinated more or he would be much lower functioning.

I know a little about how research works and how research grants are awarded. It's a self-serving system all the way through peer reviews and publishing (which is bought and paid for with pharma $$).

I don't believe governments are bypasses. They look the other way or openly cooperate in evil because the parties are in the pockets of special/evil interests.
Yes, every autistic individual presents differently. IMHO opinion autism is due to massive inflammation in varying areas of the brain. My goal has been to reduce it with natural anti-inflammatories and to remove the sources of inflamation.

posted 10 months ago
A MyAutismTeam Member said:

You are a good man, JohnHobbs. God bless you! My autistic son learned to ride a bike in 2 days w/o training wheels. The issues have been digestive, cognitive, verbal. Now these 3 are improving very fast.

I've sought the help of dozens of doctors. I have come to have no use for doctors who 1) don't have a grasp of a good health definition & who 2) don't get how all the systems work together in the body to effect good health.

For my children I don't accept mediocre medicine. If a pediatric doctor can't tell why my child is autistic & how to recover him, IMHO he should NOT be a pediatric doctor. I am an engineer & I take full responsibility for my work. So does my mechanic. Why should the pediatric (or adult) doctors be well paid holy cows??

Take your medical $$ business elsewhere.

Read Disconnected Kids by Melillo (in the US, the libraries have it), do the assessment yourself, & then do the brain rebalancing exercises he describes. Robert Melillo's facebook page & facebook have videos of a lot of them.

>>in the hope that this exercise will reduce his tendency for violence...

In my experience, the violence stems from pain. A physical presentation of the pain inside. Remove the pain by healing & the violence go away. My son had not been violent but had had outbursts. Those are GONE.

>>I cook him lunch every weekday to help provide an environment that gives him pleasure.

Clean, natural food is good medicine. Gluten-free if not supplementing with enzymes to digest gluten. Nothing artificial. Dairy can be a problem (at least at the start). My son could only tolerate a few foods in the beginning. Now he is eating everything including vegetables.

>>I do wish the authorities could respond positively.

I would keep a scorecard on the authorities and hold them accountable.

>>You say that treating autism in subsets is unhelpful. ... which disability could be matched with an appropriate therapy.

I've seen therapies as very limited in outcome. They should be done but should not be a replacement for healing. Determine which functions are weak & fix them. You will NOT need therapies. I am seeing it with my son now. If he can be healed, any child can be healed.

>>Their subset is disposed to no treatment, just acceptance and I respect that.

Yes, yes, yes! But focus on healing! You all need to become fierce warriors for your children. Do the haka 3x a day if you need motivation. The children can be recovered or least vastly improved. I now believe I can have full recovery with my son.

Autism is just a label. Never accept it as destiny. Pray to God for inspiration and look for solutions. Study in a critical way the testimonials on youtube.

>>For my grandson, trapped in a body he can't control and those like him, we would be joining doctors who have also abandoned them.

Yes, of course. Do you have functional medicine docs in the UK?

posted 10 months ago
A MyAutismTeam Member said:

ChristiansMom2012. Thank you for your posts. So many of us are caring for children desperate for help and you have put a point of view shared by so many. I don't see how we can make progress until we understand their problems and that is why I believe that each subset of autism should be researched as a separate condition.
This would avoid such confusion. Sue's type of autism is not that affecting my grandson or apparently your child.
Let's all unite to help each other.

posted 10 months ago
A MyAutismTeam Member said:

@A MyAutismTeam Member: my intent isn't at all to say that one's quality of life should be denied, by any means. What hurts me to see is when people act like their kids are broken and need to be fixed, when in actuality, SOCIETY needs to accommodate for the unique individuals it encompasses. I'm not denying that there are people who have many challenges, or throwing them under the bus in any way, shape, or form. What I'm saying is that there's this notion that autistics need to be "healed." Healed from their neurotype that they were born with? Everyone is different for a reason, and how do you know one who appears not to have quality of life, isn't, in fact, having such? I know of several people whom society may deem as "high needs," who don't WANT to be changed. Take Amy Sequenzia, for example. She may need assistance with ADLs, and may be nonverbal, however she'll be the first to let you know that she does NOT want a "cure." My point is that quality of life is subjective. Here's another example: I'm aromantic abd asexual. I've had people almost feel sorry for me because I've never experienced being in a relationship, and I therefore must be missing out on something. Sorry for what? This is the way I've always been, and quite frankly, I wouldn't want to be any other way. I don't feel like I'm missing out. Again, this is just an example. So... I guess what I'm trying to say is that of course I want to see everyone have quality of life. The first step is finding what works for each person, and tailoring the environment to their needs. No one should have to conform to a mold. No two people are alike :)

edited, originally posted 10 months ago
A MyAutismTeam Member said:

Autism doesn't need to be cured or prevented. Different neurotypes need respect, instead. We're all different for a reason.

posted 10 months ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in