Does any of you experience the frustration of family or Drs. Not believing your child is on the spectrum??

Does any of you experience the frustration of family or Drs. Not believing your child is on the spectrum??

This is frustrating because its behavior not a specific LOOK of having autism.

A MyAutismTeam Member said:

My daughter looks normal but her behavior is a give away that something is different about her. There's nothing like a blood test for autism so some people on the spectrum are not visibly acting as if they had ASD. If a trained doctor can't "see" the autism then it either doesn't exist or the doctor is looking for typical characteristics of ASD which isn't easy sometimes when there's no "typical" ASD person. For example, I've read all the talk about gut problems and changing diets to improve their lives but my daughter has never had a gut issue so a special diet would be just a another unneeded battle.

posted 26 days ago
A MyAutismTeam Member said:

I can relate. When we took our son to the same Neurologist that his sister sees, he refused to diagnose him because he was social. We ended up taking him back to him at 12 and then he was diagnosed. When I have told people both my kids and I have Autism,the response is you don't look like you have Autism.

posted 26 days ago
A MyAutismTeam Member said:

We lost a year because our pediatrician wouldn't believe us, time that would have been much better spent in early intervention. Demand an assessment. You spent more time with your child than the doctor does.

posted about 15 hours ago
A MyAutismTeam Member said:

Yea i get you guys as well.
My son was diagnosed from a clinical psychologist for autism even though i had mothers intuition and knew before hand 😢 but my son also sees neurologist for seizures hes had as well and i have given the neurologist the diagnosis report and tell him my sons symptoms and he has the nerve to tell me its NOT FAIR i am saying my son is autistic. What the heck!!! 😠 He has the diagnosis, he doesn't really talk besides a few words and i as his mother know him better then any dr out there. But the dr does not have any other suggestions if he is telling me he does not have autism. Its fustrating because autism is based off of behavior and there isnt a specific blood test for it. And aside of that i have family members who say oh he seems fine he isnt autistic when they only see him once in a blue moon for family gatherings. What nerve 😡

edited, originally posted 25 days ago
A MyAutismTeam Member said:

YES. First of all, there is NO specific look of having autism. Secondly, my 5yo son is very verbal but is very hard to follow when he tells a story. He makes inconsistent eye contact and doesnt respond the first time you ask a question. I ask twice, then I say, “Andy, I asked you a question. Please answer me,” and he usually does. People who say the diagnosis is wrong, he’s just on his own time table, autism is overdiagnosed, he cant have autism - None of them are neurologists. If you’re a prominent dermatologist, a teacher, a nurse, whomever - I dont want to hear myself being invalidated for all the work Ive done coordinating my child’s services and making sure he gets what he needs to learn and grow. I get your frustration. I try now to either ignore the comments or take the opportunity to point out the reality of neurodiversity. ;-)

edited, originally posted 26 days ago
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