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A MyAutis...

Can anyone tell me how to reply to the people who have responded to my question? I don't see a reply button. So I don't know if this is the right one to respond to.

Find a good dentist and ask for referral. He may have trouble chewing, or could be a texture issue.

Does he have any health insurance coverage or a pediatrician? Or can he see a pediatrician? My pediatrician writes the prescription for feeding therapy to the health insurance- every six months, no questions asked. Not to discourage you, but mine has been in feeding therapy of 3 or 4 years and I have not seen much progress but I do think it’s useful and will help make it all click someday. He eats solids, limited diet. I took him to a gastroenterologist this year to see if it’s reflux issues and he’s currently taking some medicines for that. Also, I found an ENT doctor who did tongue tie surgery on him a few years ago- clipped something way in back of his tongue. I feel that helped with his speech, and helped a little with the feeding because it gave him greater movement of his tongue around his mouth.

I’ve asked this question too. Why aren’t children with more severe issues prioritized, it should be common sense. My son has some severe fine & gross motor issues that make me feel similar to you. He is in desperate need of PT & OT & yet the service providers don’t exist in my area. I’ve often felt forced to choose providers who aren’t experienced & wind up back at square one seeking yet another new provider.

Years ago my son was labeled “failure to thrive” as a toddler & I feared for him because he wasn’t gaining weight due to his chewing & swallowing difficulties. I definitely understand the weight of your concerns.

I think it comes down to contacting the highest person in the chain of command at the facility you are trying to get him in. If you can speak to that person directly & throughly explain your child’s situation hopefully you can convince this person to prioritize him to the top of the list. I’ve found common compassion is lacking in the world since my son was diagnosed over 6 yrs. ago. You may need to try numerous facilities that will maximize your chances of getting him help as soon as possible. You also may have to drive farther from home to get him the services he needs. It can be an uphill battle, but keep fighting no matter how many times you feel defeated. I hope things turn around for your son.