Im very frustrated because his PCP didnt give us any sort of information. I understand it isnt her area of expertise but it would have been nice to be offered some support or resources.
I don't know if you're taking your child to a Neurologist, but if so here's the website of the Neurologist both of my kids use kidsbehavioralneurology.com I know you don't live in NY but the website gives you an insight as to what to expect from the visit
We saw a developmental pediatrician first and then a neurologist. My son will soon be 22 so it was even harder back then to find information. I don't know if Temple Grandin has a website or not but she is an excellent resource for information in her books. Most people think Autism Speaks is a good resource but when we needed help they referred us to other places. I did some looking and it turns out that of all the money they bring in only 3% actually goes to help people on the spectrum. If I can help in any way please let me know.
Usually there is a checklist that you are asked to fill out, a lot of times they have you do it ahead of time because it's long, then they have an evaluation form they fill out...they will also observe and ask a ton of questions. My son's neurologist did a few play type tests during his evaluation too, and he requires all of his patients to have an MRI follow-up...some do some don't to see if anything else may be going on. I would contact wherever you are taking him see if there are any forms you can fill out online ahead of time, and maybe they can give you an overview on what to expect...while the forms are pretty universal the actual evaluation can vary from each provider, they all have there own methods if you know what I mean. Good luck 😁