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I just found out that my 19 month old has this variation (through a chromosome microarray). There seems to be more information related to 16p11.2 deletion over the duplication. Anyone else's child have this? Can I hear from your experiences? We are slated to see a geneticist in September. Thanks in advance!
Oh my gosh-thank you so much for this!
Hello everyone
We are at the very beginning of our journey... Since testing takes time, I wanted to be proactive and do as much as I can on my own and with help of our family and friends. How do I introduce them to the issue? How do I ask for appropriate help and support? What is the right thing to say and what is not? Is it ok to ask for monetary help (costs of therapy, dietary supplements, therapeutic accessories, etc) if yes, how to do so in a delicate manner
Thank you for all of your… read more
Ok, I get where you're coming from. I agree, then just an honest approach will be best. Throughout that whole time with my kids, I just presented everything very matter if factly to people
Thanks,… read more
Please mention your child's age and list the activities.
Brenden is 3. I take him by the hands and get down on his level. I tell him to look at me in a firm tone, sometimes I will have to say it 3 or 4 times. but then his eyes snap to mine, and I will start… read more
I would definitely start by asking him what he’s interested in. Maybe you can find a program in his area of interest so that he has something to help him engage with others. If in person is too much… read more
It’s hard to say what our kids get out of the things are obsessed with it might just really comfort him and help him feel regulated in ways we don’t understand so I don’t know if there’s anything… read more
Oo I like that idea, he gets very excited about very active activities like that, noticing cracks etc
My daughter is 3 almost 4 she’s non verbal and has asd and developmental delayed she won’t keep clothes or pull ups on and loves to smear poop on windows and walls I’ve tried to sit her on the toilet she just cries once she reached down and grabbed poop before it hit the toilet water and smeared it on the bathroom walls how can i potty train her?
My son’s aba therapist made us a social story. He was doing exactly what your daughter is doing. We had to have him in a backward sleeper, taped up so he couldn’t reach to open. It was such a… read more
I have an Autistic son who turned 18 in 12/22. He is finishing his schooling years in June of 2023 with services offered until 2026. The post secondary program does not warrant much help for those on the spectrum. Many end up going back to the high school environment where there is an autsim program. We are looking to move out of state (from Maryland to the west coast of Florida). My son, I firmly believe, would benefit greatly by living in an environment in an assisted facility with daily… read more
I worked as a staff in Group Homes for 18 yrs in MI, And have owned my homes in WI for 10. In MI the biggest help would be contacting MORC the Macomb Oakland regional center. They only service Macomb… read more
When your ASD kiddos/Teens(Not so much adult) went through growth spurts, what behaviors or symptoms did they have? Were any of them worrisome?
Thank you everyone for the feedback! @MyAutismTeam users... I greatly appreciate it!!
@A MyAutismTeam Member What did your son do during the regression period? Aziel's mind is delayed as well.
My grandson puts himself to sleep by pulling on a sock with his mouth to start to untangle it until all of the threds are pulled out. What can I do to change this behavior.
Also, my 13-year-old grandson is home schooled and has no friends other than family and his puppy. Is there any kind of social activities he and others can attend? Are there any churches who may have Youth Meetings where kids can meet and greet, maybe dance and sing or play card and board games>
I let Stephen tear up old magazines.
There's always a 'event' that leads up to this, and lately it's been going to His mom's.
Figure out the Why/Trigger.