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Problem Going To Bed
A MyAutismTeam Member asked a question 💭

Over the summer my 8-year-old son has started this weird kicking thing. Not kicking people. He lays down in my bed or his and kicks his legs out, closes his eyes and so forth. Like an over stimulation thing or something. But we have come to recognize that it is every night like he is fighting fatigue or sleep or whatever. He is non-verbal so there is no getting his input except for "No." He does say that quite well and for everything. Anyway, we are dying to figure out what to do to help him… read more

posted September 11, 2014
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A MyAutismTeam Member

I won't discard the suggestion and will bring it up to.his doctor. Thanks for your reply.

posted September 13, 2014
A MyAutismTeam Member

I didn't give the best description for RLS. Symptoms vary and it's not widely understood just like autism in a way. It not uncontrollable like a muscle spasm but I really get the urge to move my legs when trying to go to sleep. I sleep pretty soundly later. I hope you at least ask your doctor about it.

"People with RLS feel uncomfortable sensations in their legs, especially when sitting or lying down, accompanied by an irresistible urge to move the affected limb. Because moving the legs (or other affected parts of the body) relieves the discomfort, people with RLS often keep their legs in motion to minimize or prevent the sensations."

http://www.ninds.nih.gov/disorders/restless_leg...

posted September 12, 2014
A MyAutismTeam Member

It is not restless leg. He is in full control. He is also completely still once asleep which restless leg is not. This is, from what we can tell, a kid who is fighting sleep or over stimulated or has something going on. One night we thought maybe it was because my husband had come to bed before me which was not the normal routine and started trying to make sure we did the exact same thing every night. That was near impossible but we did it and it did not seem to help. We also had ONE night when he was really happy that he went to bed without doing it at all. The only thing different was that for no apparent reason that night he was happy, smiling and playful... The way he is at most times when he's not laying on the bed kicking his legs out. We see the GI doctor today in our effort to make sure there aren't physical things happening to cause it.

posted September 12, 2014
A MyAutismTeam Member

Is it different than restless leg syndrome? I think I've it my whole life and 3 of my siblings have it, too. I didn't think was unusual until when I was in the Army another soldier said he thought I was running in my sleep. It not something you can control except with drugs but it can interfere with sleep and most people just don't understand it.

"Genetics also plays a key role. About half of those with restless legs syndrome have family members affected, too."

"No one knows the true number of people with restless legs syndrome. About 10% of the population is affected, and about 2% to 3% have moderate to severe symptoms that affect their quality of life."

http://www.webmd.com/brain/restless-legs-syndro...

posted September 11, 2014
A MyAutismTeam Member

I wish I had an answer, I am having the same issue with my 7 year old son. Bedtime is very difficult. Especially since we moved about a month ago, even though he still had problems with bed before that, it has gotten WAY worse. I don't know how any of us are functioning daily anymore. Good luck to you :) (and me!)

posted September 11, 2014

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