I used to think about it and worry about all of the time. I started praying and giving it to the Lord. In addition to this, I make sure to meet his teachers before school starts at Open House. His teacher and I write back and forth in a Communication Notebook at least three times a week. I also call and talk to the teacher about 3 times a month. They know how much my son means to me and how much I work with him at home. I am not afraid to speak my mind because I would rather communicate an issue than complain about one. His teachers are amazing and like I said,they all know me. Make sure your face is familiar to the teachers and communicate, communicate, communicate. It will make you feel better when you feel like you know the people that work with your child better. I even asked for homework. I ask them to tell me what he struggles with so we can work on it at home. Long winded I know. I'm sorry. Hope this helps.
I think about it all of the time. I want to make a plan when we have a better idea of what he might need. We do not want him to be lonely.
It's one my worst fears. A lot bad things can happen to a pretty ASD girl who may not become worldly wise in the next 14-17 years. Most parents don't know where their kids will wind up but at least they will more responsible for their actions or pay the price for irresponsibility. My daughter may end up dependent on others for life and some of those people may not be very nice or care about her as individual. She has a brother and cousins but will they take care of her?
Also if you look on the Autism Speaks website, type in your city in the search bar and they have local resources available to you. Often they have speakers and info sessions with experts who cover these type of topics. Where I live in San Antonio, they have one coming up about setting up a living trust for your child. I missed one in the last few months that covers Social Security and Medicaid and those types of resources that your child will undoubtedly need at some point. Good luck! I feel your pain with this issue!!
My son is 43 years lives on his own in a HUDD building and works part-time at the local airport. He did drive but doesn't anymore.
He has a degree in computers but has never worked in his field. He just finished a course at community college to receive a certification in computer security. He took the test to be certified but missed passing by over 100 points. He'll take it again as he didn't know that there were practice tests. This time we've to pay for it' We're hopefully this will help him getting into the computer field.
I hope this gives you hope for the future as I feel that for the children with Autism there is more in future for them.
Harriet@