My Son Is 13 And Just Had His First Seizure. If You Have Experienced This, Please Help Us With Any Suggestions For Treatment. THANK YOU. | MyAutismTeam

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My Son Is 13 And Just Had His First Seizure. If You Have Experienced This, Please Help Us With Any Suggestions For Treatment. THANK YOU.
A MyAutismTeam Member asked a question 💭
posted November 15, 2015
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A MyAutismTeam Member

My daughter is 17. This year she's had three total. Go see a neurologist. They're very scary. You must note what he's doing prior, how long it lasted, and the seizure in itself for the doc to make a recommendation. Please keep me posted.

posted November 21, 2015
A MyAutismTeam Member

Thank you everyone!

posted November 21, 2015
A MyAutismTeam Member

IVIG is immune globulin in bags like blood given with a slow drip through an IV intraveineous. My son has an auto immune disorder where his own body makes anti-bodies that attack his thyroid. In rare cases those anti-bodies can attack the nervous system in the brain and all the Autism spectrum disorders are neurological (not psychological as many people assume it is). When this happens it is called an encephalopathy and when the brain gets attacked it causes inflamation which is deemed encephalitis! One can take oral "chemo" to fight those anti-bodies which of course compromises the auto-immune system fighting anti-bodies...and one who maybe can't take the oral medication can do the IVIG treatment. It is extremely costly as we did it once and our son was in the infusion center two days in a row. One is given 4 bags of immune globulin which take four+ hours each and my son got intense migraines for two days starting the following day. If one has an encephalopathy and gets encephalitis it causes multiple neurological issues including seizures, coma, and even death. My son has over a dozen diagnosed neurological disorders and the Hashimotos thyroiditis which his entire birth family has and if anyone has encephalopathy it would be one of them so our neurologists tried the IVIG once and the chemo to see if we could clinch the diagnosis by seeing improvement but we didn't. It doesn't mean our son doesn't have it, as many people who get it may not see symptoms until later in life. (ages 45-65) Our Insurance covered the IVIG but it was a $90,000.00 treatment...not something we would probably do again, unless our son went into a coma... Also our son's birth family has a history of seizures and his little brother has had brain damage from them. We have asked that they check and monitor our son periodically.

posted November 21, 2015

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