My Son Is Having Episodes Nightly Before He Goes To Sleep It Varies From 5-20minutes | MyAutismTeam

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My Son Is Having Episodes Nightly Before He Goes To Sleep It Varies From 5-20minutes
A MyAutismTeam Member asked a question 💭

My 9 year old has been having episodes quite often when it's time to go to bed, he's not resistant in anyway and demands I pray with him before bed and turn off his lights but these last few days he has been crying yelling and hiding in his closet. When I go to check on him he tells me "good night please" "light off" which I take as he needs some alone time(quick background he comes from a broken home my mother had him for a year and I recently(paternal aunt) became guardian and I am a new not… read more

posted June 5, 2017
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A MyAutismTeam Member

Maybe try to discuss this with him and his psychiatrist, as you might get a more in depth answer. Maybe he needs a night light or small flash light to feel more in control. He might think if he goes to sleep that he will have to change home situations again. I will pray for you and your family situation. If he was removed from his situation at night, you will probably need to do some trust building exercises. Maybe if you get your night clothes on when he does and brush teeth together, it might lessen his fears.
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Beth Ann Janaky

posted June 6, 2017
A MyAutismTeam Member

I've asked him if he would like a little light and he tells me no- he's semi verbal most of the words are usually yes no answers to questions and demands- he hasn't quite got the just of conversation and the most he has replied is 3 word sentences which usually end in please . Sometimes he yells words and he speaks so fast and loud I will ask him to repeat himself till the point of frustration and then I stop when I can tell I'm not going to get it. Thank you by the way for your advise. None of my friends or family have experience with asd children so sometimes I feel like I'm going in this blind. But for the most part I can tell he is happy here and we are bonding on more than a verbal relationships so that feels amazing. When it's time for bed with your daughter do u stay in the room until she falls asleep or do u let her get tired on her own? I've kind of been at war in my own head when he has the episodes if I should let him cool off by himself or comfort him?

posted June 6, 2017
A MyAutismTeam Member

@A MyAutismTeam Member at the moment he doesn't have a psychiatrist, I'm desperately advocating to get him services but ATM my little town doesn't seem to have much and I've been bumped off to so many different facilities it has been frustrating. But that is a good idea with the night light. My fiancé and I were thinking about getting him one of those clocks that have lights on them and change colors because we have had issues with him waking up at 4-5am every morning,waking up my 2 y/o and tearing up my house and bathroom. So we wanted to try and see if we could use the colors to signify when it's okay to come out of his room to start the day. Have you ever heard of this? Also to both @A MyAutismTeam Member AND @A MyAutismTeam Member do u gals allow you asd child(ren) to stem? My child loves to record himself rambling on the leap pad or iPad and replay it over and over but sometimes I see it gets him riled up and anxious but someone once told me to just let him do it - ? I'm trying to get him to use more words to kind of put his vocal stemming on the back burner but when he does this with the camera it worries me we are going to regress. Thank u so much for all your guys help u don't know how much it means to me to have someone to talk to and understand me!!!

posted June 6, 2017
A MyAutismTeam Member

@A MyAutismTeam Member thank you so much you are too sweet, to be honest I haven't pinned point the word or phrase that does the triggering so far it's been are u ready for bed? Or are u getting sleepy then he shouts "bed please!" Or "good nite please" then I pray for him and he sends me out the door and then he falls apart. So as of now what he does is a lot of crying then I hear some vocal stemming , a lot of shouting but all of it comes in like 3-5 minute intervals, last night was the longest one so far lasting almost about 35 min.when I go in his room that's when he tells me good night please and light off! So I take it as he needs some space to cool down. Then he eventually falls asleep and wakes up the next morning fine? I really feel helpless when this happeneds and to be honest it makes me sad for him because I know he's hurting

posted June 6, 2017

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