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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Lexington, SC

My son was diagnosed with autism (mild/moderate) and speech language imparairment when he was 2yrs old, and was recieving speech therapy, occupational therapy, and was attending the ABT academy (applied behavior therapy). Now he is six yrs old and have improved alot. The school wanted to take him out of OT and ABT because of his improvements, but they feel he should keep his autism title for several reasons, this was in March 2012. Since this time, he stopped learning like he was, could not… read more

November 3, 2012
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Answer Summary

Members overwhelmingly agreed that autism is a lifelong condition and that children do not outgrow it, though they can develop coping skills... Read more

Members overwhelmingly agreed that autism is a lifelong condition and that children do not outgrow it, though they can develop coping skills and improve enough that symptoms become less obvious over time. Several members warned that school districts often have financial incentives to remove autism diagnoses because it is an automatic qualifying condition under IDEA, and they strongly encouraged the parent to know their legal rights, refuse to sign any IEP changes they disagree with, and seek an independent evaluation or consult a special education advocate or attorney. A recurring theme was the importance of fierce parental advocacy, as once services are removed they are extremely difficult to get back, and only the parent and doctor should determine the diagnosis, not the school.

A MyAutismTeam Member

I think it's safe to say that your son will not outgrow his autism. He will adapt and learn new skills that may mask the symptoms you see. Some symptoms will change as he grows. Some behaviors disappear, and others may take their place. The underlying 'cause' of autism is not known. I'll leave it to others to discuss the school.

November 3, 2012
A MyAutismTeam Member

I'd contact either a special ed advocate and/or a special ed attorney. It's important to know your rights as a parent, and know your son's rights as well. Good luck to you!

November 4, 2012
A MyAutismTeam Member

I think you need to seek some second opinions. As a general rule of thumb, Autism, unlike behavior management problems, is not something that is simply outgrown. It is ridiculous that parents are being told that their children are suddenly not autistic when the cause of autism has not even been determined, and a cure has not been discovered. Ultimately it is not the school's decision, it is between you and your child's doctor, and the school is required to meet the child's needs in the IEP, so make sure they do not do anything without your written consent. If you did not/do not agree with anything, including them trying to change his diagnosis or any services he receives, do not sign the IEP, demand a new meeting, and be prepared to have to stand up for your for your child's rights. Remember you are his best advocate.

Good Luck!

November 4, 2012
A MyAutismTeam Member

autism does not have to be lifelong ppl do recover parents of children that dont recover will always say there is no "cure" however you want to define that as but its sounds like the schools wants to but him away and not give the best options get ready and advocate for him like never before

November 5, 2012
A MyAutismTeam Member

Your child is going to get better at different things, and then regress and then get better with something else, and then my regress with that, and then gett better, it is just the way autism is, it is not a curable problem so do not let the school dictate what is best, and do not even let them change a diagnosis. If they attemp to fight it with the help of your doctors because once you loose programs it is very difficult to get them back.

November 5, 2012

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