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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Can I Get Past The Waiting Lists And Get Help For My Son?

A MyAutismTeam Member asked a question 💭
Cookeville, TN

Every time my son has an intial appt with therapy he needs they put him on a waiting list that is any where from 3 months to a year. How can I help him now?

November 18, 2012
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Answer Summary

Members rallied around a parent struggling with long therapy waitlists for their son, with the overwhelming consensus being to stay proactive... Read more

Members rallied around a parent struggling with long therapy waitlists for their son, with the overwhelming consensus being to stay proactive by calling or emailing weekly, getting on multiple lists simultaneously, and always remaining respectful yet persistent with case workers. Several members shared practical strategies including contacting university speech and OT departments for interim help, using online resources like zacbrowser.com, escalating concerns up the chain of command when case workers become unresponsive, and requesting help from local legislators if needed. A recurring theme was the reality that wait times can stretch from months to years due to high demand and limited providers, but consistent follow-up, self-advocacy, and the squeaky wheel approach often help families move up the list faster.

A MyAutismTeam Member

Depending on where you live I would suggest that you take the therapy order and look for as many speech/ot centers that you can call them up and ask how long the wait list is. Go with the one that has the wait list with the least amount of time. Check hospitals, clinics and centers nearby your home as well. In the meantime if you have down time at home check out zacbrowser.com its a fantastic resource to help you with your child and their speech. Good Luck!

November 19, 2012
A MyAutismTeam Member

I once was told that the "squeaky wheel gets the oil" and is so true, all you have to do is call often and e-mail often.

November 18, 2012
A MyAutismTeam Member

Get on several lists. Then call frequently (once a week) to see if a spot has opened yet. Always be respectful when you talk to them but its ok to be desperate. But frankly a 3 month wait is not long in this world of too many autistic kids and not enough providers. In our area, we've waited years for a speech therapist. But it was pretty easy to get an OT. I only waited a couple years for funding but I also got my senator's help. I know people that have waited 10 years for that.

November 19, 2012
A MyAutismTeam Member

Moving up on those lists with the state is hard. To be quite honest EVERY single person I encounter in terms of case workers I am EXTREMELY friendly with them and always place a sense of urgency (which I'm sure you do). Typically I am also very diligent we're talking maybe 6-10 emails a week on what the status is. I've found the more you pry the faster things get done.

It is different for every state so it's hard to say what you can do to bypass this. If I were you I would try to seek local help as well. Typically there are many groups and therapy organizations who can help before your services kick in.

Also perhaps your private insurance... you may want to see if they will cover anything.

Hope this helps.

November 18, 2012
A MyAutismTeam Member

We has OT, SLP, and are starting ABA. I do a lot of the TEACCH stuff myself and I have found an amazing book called An Early Start for your child with Autism it has really great info and step by step help.

June 23, 2013

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