Our 6 yr old ds (ADHD, PDD-NOS) has been seeing an ARNP for sometime now. When my dh took him to his appt. this evening, she informed him that Jacob's case is "too complicated" for her and recommended that he see someone else! She has also decided that in addition to ADHD and PDD-NOS, Jakie also has Asperger's (which his 10 yr old brother has), OCD and is self-destructive! She continued him on the 20 mg Daytrana patch, even though it doesn't seem to be doing jack squat! Also, another therapist… read more
Whenever anyone in an office tells you anything like that you need to report that. I had a doctor that said that to me(too complicated). I just took her to someone else. I am glad he said it. I didn't need to waste time with someone who didn't want to be bothered.
sounds to me like you should go to an autism specialist and get a throughough evaluation done. a combination of those disorders I would think unless your child is appropriately social would lead more to ASD. But go to someone with throughough knowledge on developmental disorders.
I feel for you that it's frustrating but if a nurse practitioner was the one telling you all these diagnoses she was TOTALLY overstepping her professional bounds. It's like telling you that you have cancer but then not sending you immediately to a cancer specialist for confirmation and treatment. If would be fine for her to say she had concerns about his development and giving you a referral to a specialist but if she is giving you actual diagnoses - run away from her. She is not qualified to be telling you these things.
I agree with @A MyAutismTeam Member
My family doc said the same thing as far as prescribing meds to my son (Asperger's & ADHD). I appreciated her referral to someone with more experience, and we still see her for other things like when he has a cold, infection, injury, etc.
May is also right about having both diagnoses. PDD-NOS is used when the child is clearly on the Autism Spectrum Disorder spectrum but do not fit any of the known/defined disorders (Autistic Disorder, Asperger's Syndrome, Rett's Syndrome or Childhood Disintigrative Disorder) hence the 'Not Otherwise Specified' part.
If she feels he does fit the Asperger's criteria, he would then drop the PDD-NOS as his ASD has now been 'Specified'. It is pretty common to go from unspecified to specified as the kids grow and show more of their difficulties. It is one of the reasons the new diagnostic criteria will make it less confusing for all involved as we will all have ASD as the main diagnosis.
I think it's great that she told you she felt out if her depth if she couldn't handle your sons multiple issues. I would have to agree that a nurse practitioner probably isn't going to have the expertise to deal with a complicated diagnosis. Sounds like she's very wise! You certainly could ask her if she'll see him for annual checkups and sick visits though.
Just to clarify something for you to hopefully help you feel a bit less overwhelmed - PDD-NOS and aspergers are both part of the autism spectrum so he either has one or the other, not both.