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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Euclid, OH

My son is 4 soon to be 5. He was recently diagnosed with PDD-NOS. We have started looking at schools and speech centers. Now I'm trying to find a psychologist and this is a struggle. I feel like there should be more done for him. Like I'm missing something. I tried reading all the papers and pamphlets and brochures they gave us but it is just overwhelming.

May 14, 2013
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Answer Summary

Members rallied around a parent newly navigating their son's PDD-NOS diagnosis, sharing the overwhelming but common experience of feeling lost... Read more

Members rallied around a parent newly navigating their son's PDD-NOS diagnosis, sharing the overwhelming but common experience of feeling lost after receiving a diagnosis with little follow-up guidance or direction. Several members recommended practical next steps, including finding a DAN (Defeat Autism Now) doctor for thorough assessment, contacting the school district early for IEP setup and behavioral therapy services, applying for state medical coverage based on the diagnosis, exploring nutritional interventions and supplements, and connecting with books like The Autism Book by Dr. Bob Sears. A recurring theme was the critical importance of early intervention, self-advocacy, asking for what you need without hesitation, and leaning on community support to feel less alone in the process.

A MyAutismTeam Member

I highly recommend reading "The Autism Book" by Dr. Bob Sears and "Healing the New Childhood Epidemics" by Dr. Kenneth Bock. Traditional therapies are important, but the gains we have seen from those have been of the "slow and steady" kind. By contrast, we have seen dramatic jumps literally within days of adding certain nutritional supplements.

May 14, 2013
A MyAutismTeam Member

hi Tanisha, I feel your frustration. I experienced the same problems with my son. I understand that you are employed with medical benefits however are you aware that your child is eligible for medical coverage through the state based on his diagnosis? I have personal choice thru my employer and my son receives additional coverage through the department of public welfare. Those benefits will pay for a host of services out there. Additionally, you should be linked to an agency in your area and a BSC who will enlighten you on other age appropriate programs and will walk you through all the "red tape". Good luck

May 17, 2013
A MyAutismTeam Member

I would contact your school board where your son will be starting school. They should do testing, can recommend doctors, and should even help with the transition from preschool to regular school. We had a behavioral therapist meet with our son three times a week at daycare before he even started kindergarten (at a public school!). She was assigned by the school board. He will receive an IEP and already be set up before you start school. Remember, always ask for what YOU want. And ask as many questions as you want also!

May 17, 2013
A MyAutismTeam Member

Another suggestion is to - again - find a DAN doctor in your area who can recommend a good nutritionist who will be able to help with good nutrition. If your child is a picky eaters - most children on the spectrum are - the nutritionist can recommend an all-natural wholefood supplement to make up for is lacking in your son's daily diet.
If I may ask, where do you live? I invite you to visit my Facebook page "Support for Children with Autism" some of us may have suggestions for you. You may also want to follow Chantal Sicile-Kira on Facebook. She is an authority in autism and nutrition.

May 16, 2013
A MyAutismTeam Member

I would look for a psychologist that deals with Autism and/or children in general. They usually have the best knowledge. Also, check and see if you have any Neurodevelopmental doctors in your aree. Some of them fall under the Genetic doctors area. I would also check into any Early Intervention services you have. If your child is too old (ours stops at the age of 3 where I live) then they should be able to put you in contact with the next group that handles the age that your child is. Example, we went from Early Intervention services to a Central Intermediate Unit. Both of them work with children that have any type of disability just they work in different age ranges.

May 16, 2013

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