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Should I get a second opinion?

A MyAutismTeam Member asked a question 💭
Keystone Heights, FL

My 4 year old son had an evaluation today. Doctor told me that he has all the characteristics of an Aspie child, but because of changes made to diagnosing criteria he can't formally diagnose him. Now, you are either autistic or your not. Because he's verbal and advanced in cognitive skills he's not autistic. I believe in my heart that he has aspergers and am so upset that they gave him a diagnosis of ODD and possible ADHD.. Should I get a second opinion?

June 13, 2013
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Answer Summary

Members overwhelmingly encouraged getting a second opinion after a parent shared their frustration with a doctor who refused to diagnose their... Read more

Members overwhelmingly encouraged getting a second opinion after a parent shared their frustration with a doctor who refused to diagnose their verbal, cognitively advanced 4-year-old with autism despite showing clear characteristics, instead offering diagnoses of ODD and possible ADHD after only a brief 45-minute evaluation. Several members explained that the DSM-5 changes were meant to consolidate all autism diagnoses under Autism Spectrum Disorder rather than exclude high-functioning children, recommending specialists like developmental pediatricians or neurologists who conduct thorough multi-visit assessments including parent interviews, teacher evaluations, and direct observation of the child. A recurring theme was trusting parental instincts, fighting for appropriate services, starting therapy even while seeking clarity on diagnosis, and documenting concerns with advocacy organizations like Autism Speaks to address problematic interpretations of the new diagnostic criteria.

A MyAutismTeam Member

My best advice to anyone in this situation is to go with your parental gut instinct. You know your child far better than a doctor who has evaluated them for 3-4 hours. That being said, the higher functioning the child, the longer it takes for it to be formally recognized. So seek therapy as if your child is on the spectrum. At 4 months, our doctor said, "Let's just start therapy and hope we are wrong. After all, no one ever looked back and said, 'Wow.....I wish we hadn't done that therapy!'"

June 14, 2013
A MyAutismTeam Member

I would get a second opinion. My son is verbal,affectionate and loves people. He was diagnosed with mild autism. The change wasn't meant to eliminate children with Aspergers but to condense it all into autism. Check out www.autismspeaks.org/what-autism/asperger-syndrome

June 13, 2013
A MyAutismTeam Member

I would get a second opinion. My son was diagnosed with anxiety and ADHD before he was diagnosed with autism. I had to just keep looking for help. I didn't know he was autistic. I just knew he struggled. Now, they are calling it Autism Spectrum Disorder since it's such a wide spectrum. Good luck to you.

June 18, 2013
A MyAutismTeam Member

That doctor is not entirely true...Aspergers did not go away, it just got incorporated under one title. Do some research and yes seek a second opinion in my opinion

June 15, 2013
A MyAutismTeam Member

As a parent we need to listen to the inner voice (the Holy Spirit)that warns us and guides us , Anytime the thought of should I get a second opinion enters our mind, don't second guess it, remember we have a God who is a Loving, all knowing and a very hands on Father, who is with us always nudging, and guiding us non stop all day long, wanting the best for us, Just Listen"..

June 14, 2013

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