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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Mount Vernon, WA

just curious to how many people collect SSI for their child's disability? I am just looking in to this, but after reading on the SSI website and the children's packet, it sounds like Peyton would possibly be eligible for this. Can somebody give me some insight on how this works? Peyton has Asperger's/ Autism, butr I have all the paperwork that we be needed to apply (his IEP, school information, psychatiry info, etc etc)...just wondering how it all works.

October 21, 2013
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A MyAutismTeam Member

We get SSI for both of our children and @A MyAutismTeam Member is correct they base it on family income. They do also consider other things like what your home is worth and what your asserts like cars are worth as well. You have to send them pay stubs every few months to verify income and they will adjust the payments based on that. So if you get OT money in you can expect they will deduct money from the next months check. I work salary so I always make the same and they still make us send in pay stubs.

I will say that if your child qualifies they will get a default amount or low level amount even if your family income is higher. The other thing is that is depending on the state you live in it makes a difference in the money you get as well. As an example when we lived in FL we got one rate and now being in MA we get $200 more for each child. SSI is federal but they consider state cost of living.

The good thing is that if you get it then you also qualify for Medicaid as medical so it is well worth it. You will make an appointment with them and it will be a phone appointment with a case manager. You will send them your documentation. And you will need to get that to them ahead of time so they will have it at your appointment. The more documentation the better, and you do not need an attorney for a child like you do with an adult. No one I know needed one for their child that I know of and they approved our children the first time and we had an answer very quickly.

It is not bad and it is well worth it, good luck

October 23, 2013 (edited)

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