We have had the basic testing and it did turn up a few things that were helpful in terms of treatment. We were on the waiting list for mito disorder testing but unfortunately had to switch health insurance to a HMO that isn't willing to make the referral for testing.
Genetic testing is more for you and doctor won't change what you are dealing with just label and how to deal with it possibly. EEG is if seizures are causing problems. Metabolism is diet and digestive problems. Our son was tested for 5yrs. because one Dr. was indecisive.Move on or stand up for your child before you allow that to happen to your child.
Our foster care agency had our son tested prior to us adopting him. They were seeking more answers to a family that had been chosen to adopt him, yet they weren't willing to move forward until they knew what was going on. He had already been tested for Fragile X and such at birth, so they wanted to dig a little deeper. That's when we found out about the chromosome 10 deletion...he's only the 10th documented case so we know little to nothing about it. They were able to tell us the set of deletion could cause several issues at some point. It wasn't able to give us life expectancy or anything like that. So it helped us to know what to watch for but had no affect on how to deal with the ASD day to day and what to do in regards to that.
My thought on testing is have testing done to rule out allergies or lack of vitamins and minerals in the child's system, and then address those issues as needed. The facts show that if a child does not have an allergy, or is not low on vitamins then taking more of them is not going to help, nor is a change in diet if there is not an allergy present.
When it comes to the EEG if there are sleep issues or seizure issues you are going to want to have that done as well to rule out major problems.
On the genetic side you would want to test for Fragile X and a few other issues but that is about as far as I would take it. We had thousands of dollars worth of genetics done and most of it was not covered by insurance, and it gave us no answers. There is no genetic test right now for ASD and even if there was it would not help with the situation, your child is still going to be ASD and there is no cure, just therapies.I am saying this from experience and from what I have heard from others in the same position that had all this extra testing done.
Any medical testing for known co-morbid conditions which can be treated to some extent such as seizures, gut problems / dysbiosis, allergy/food intolerances, metabolic / mito disorder, oxidative stress, nutritional deficiencies (e.g. iron), etc. can be very helpful. Some or most of these can be covered by insurance. Genetic and some of the more specialized testing (e.g. immune dysfunction, antibodies testing, etc.) is really useful if you want to keep track of what is going on with respect to ASD research and to help figure out what type of autism that your child might have, but these may not have specific treatments at the moment. We do testing for both.
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