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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have the opportunity to reach a large amount of people and thought I would use some of that time to educate regarding the emotional impact of Autism on moms, dads, siblings and the kids themselves. Is there something you would like me to share?

February 1, 2014
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Answer Summary

Members shared the profound isolation, exhaustion, and relentless demands that come with raising a child with autism, describing lives... Read more

Members shared the profound isolation, exhaustion, and relentless demands that come with raising a child with autism, describing lives structured entirely around therapy appointments, behavioral challenges, and advocating for acceptance while facing harsh judgment from strangers and even loved ones. Several members emphasized that their children understand far more than people realize even when nonverbal, that behaviors are not intentional defiance but struggles with communication and sensory processing, and that small milestones others might overlook represent hard-won victories worthy of celebration. A recurring theme was the deep need for empathy rather than advice, with members asking friends and family to reach out, ask questions, embrace their children's unique gifts, and recognize that what looks like permissive parenting is often a carefully developed strategy to help a struggling child navigate an overwhelming world.

A MyAutismTeam Member

I feel like having a son with ASD takes up my entire life. Dealing with issues at home and at school and where we can take him in public without issues. Everything revolves around autism and him. When is our next apt with which therapist, etc. Can we have a family outing? What works for our son when he throws a fit? Will it work the next time? What's he going to get upset next and bite me? I love my child, but it's tough!!

February 1, 2014
A MyAutismTeam Member

They aren't acting that way to annoy you. If you just can't read social cues to save your life, you aren't going to understand that your behavior is irritating. And no, they can't help it and no, no amount of "discipline" is going change it. Oh and by the way - the more attention you give it the worse it will be.

February 1, 2014
A MyAutismTeam Member

I think one of the things to remind people is that it can be very isolating. ASD kids frequently require a lot of parental time. Our "spare time" can be limited by the relentless demands of therapy and school, and our activities can be limited by the nature of ASD behaviors.

My son has a very high level of energy, and a very limited set of interests. He might be fine going to a theme park (or even out for a jog), but he cannot sit through a movie or a dinner.

If we let our kids entertain themselves, they will always revert to some sort of video game. In addition to my full-time job during the day, I work another full-time job each week keeping my son away from video games. I believe the games limit his intellectual development and flexibility.

February 1, 2014
A MyAutismTeam Member

These are all such beautiful answers. There is a book in here somewhere...

February 2, 2014
A MyAutismTeam Member

I would like them to understand that although our ASD children may not communicate, they most likely will understand what we are saying about them in their presence. Limit conversation about progression/regression around the children. Before my boy was verbal, we would make this mistake and he would come along and pat his behaviorist and I on the head - he knew full well we were discussing his well-being.

In short, our children may not talk, but they will understand!

February 2, 2014

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fairfax va, VA