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Grandparent Rights?
A MyAutismTeam Member asked a question 💭

I am a grandmother of a four-year-old autistic grandchild! In addition I have an 18-year-old son diagnosed with autism who has come so incredibly far because of all the services I phot and he received the immense amount of work I did with him! My grandson Jeremiah is lost his parents do not want to face the reality that he has autism! I am desperate they do not fight for him they ignore him give him a pad to play on to keep them busy in addition they do not include him in any family activities… read more

posted May 17, 2015
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A MyAutismTeam Member

I spend four years in your shoes, wrestling with the thought of calling child protective services etc. for my granddaugher, who I knew had autism when she was 18 months old and stopped talking, looking at me or getting close to me. Although I brought it up frequently, to have her checked out, the parents told me there was nothing wrong with her. After she started daycare at age 3 1/2, the parents separated and my daughter was left with twin girls by herself. I had offered to keep Bailey for a while, to get her seen by specialist, but was always refused. One day, three years ago, I got a call, asking if my offer still stood. Bailey had been kicked out of daycare for having tantrums that they could not control and there was no other option, with her mother being the sole provider. She has been with me ever since. We live two hours away from mother and twin sister, but we visit frequently and talk on skype. Bailey has made great progress, going from non-verbal to speaking in sentences. Maybe you could offer to help, without being too pushy.

posted May 26, 2015
A MyAutismTeam Member

@A MyAutismTeam Member you are just the sweetest thing ever thank you so very much! You have truly touched my heart! Yes, this journey through autism is a sad, frustrating, heart wrenching, overwhelming, at times you feel so incredibly helpless it is phenomenal the mixed emotions on a day to day basis that you can go through! From pure elation when your child does something new steps out of their little lost world.... even if just briefly....
to complete and utter frustration pain and heartbreak at the comments stares and looks by individuals who have no clue what your day today walk is...
to the school district the county the state the Department of Education Exedra Exedra Exedra! those who do not have to deal with an autistic child, grandchild or family member have no clue....
How we feel.... it is a feeling of being powerless so much of the time... at our system at this crazy crazy thing called Autism....
which affiliates our babies and pulls them into this world which we fight so hard to get them out of! xoxo much love and thank you so much! praying for you and yours always!

posted June 3, 2015
A MyAutismTeam Member

You are truly not alone with the tears. Tears of madness, hurt, fed up-ness, relief that some understands and appreciate your effort, helpless, perseverance, long suffering. Some of us seem to get more than our fair share of God's work to do. Is that because we manifest equivalent God strength? I dont know but I know there MUST be a,special place in heaven for grandmothers. I am cheering you. Fight the good fight.

posted June 3, 2015
A MyAutismTeam Member

I am not sure what someone else could have possibly said to your story. I was raised by my grandmother who is no longer here but it is by her strength that I survive and overcome. She saved me from my mother. Not abusive but ill-equipped and negligent. I totally get it. And I marvel at what you were able to do with your own son. Your emotion and sincerity comes through crystal clear. I hope, wish, and pray for divine intervention and fruit from your labor.

posted June 2, 2015
A MyAutismTeam Member

@A MyAutismTeam Member Never lose hope and faith. There is always someone out there who will understand. I am glad you came back to the site. I am so sorry another user was nasty on here.

posted June 2, 2015

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