Connect with others who understand.

sign up log in
About MyAutismTeam
Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Much Testing Did You Have To Go Through For The Medical Diagnosis Of Autism?

How Much Testing Did You Have To Go Through For The Medical Diagnosis Of Autism?

My son was diagnosed by the school 2 years ago with Autism Spectrum Disorder. They decided that he needed physical therapy. We had to go to our general practitioner to get a physical therapy script. He suggested seeing a developmental Doctor for the medical diagnosis

We've been doing this for about 2 months. We've seen our developmental Doctor twice and seen a ton of specialists. My son has extreme anxiety and has thrown up or had a… read more

A MyAutismTeam Member said:

I appreciate all of your insight. I seriously feel so much better about everything. I think I need to begin to stand up a little more and ask more questions.
I have felt that I should just leave it to the doctors who know what their doing but I was starting to second guess it and I guess I should!
The developmental Doctor is sending us to all these appts and then we see her once a month to discuss the results. I've been making notes, but I am going to make sure to write down my questions for next time.

Thank you all for taking time out of your day! I truly appreciate it.

posted almost 5 years ago
A MyAutismTeam Member said:

Just in case you are not aware a scho diagnosis is just for services through the school and is not a legal medical diagnosis. The only way to get a true diagnosis is through a doctor. You can either have that done by your PCP or a specialist like a neurologist.

Our children have a PCP, a neurologist, and a psychiatrist as well. We use all of the doctors for different needs the children have, and they have all given us a diagnosis, and written letters of recommendations for services. We have used this for SSI, and for services through the school.

posted almost 5 years ago
A MyAutismTeam Member said:

Gastroenterologist, neurologist, endocrinologist, geneticist, psychologist, pediatrician... and the list goes on. But it is all worth it when they can help you obtain the help your child needs. It is a long journey and at some point you will feel you are becoming an expert on autism.

posted almost 5 years ago
A MyAutismTeam Member said:

What is that supposed to mean about ignorant comments? My experience was my experience

posted almost 5 years ago
A MyAutismTeam Member said:

for us it was an almost a year process.....it shouldn't be that way but it is, at least for us. We went to a developmental medicine doctor first who was useless. He spent like 5 minutes with her and diagnosed her with a bunch of random things we didn't agree with (and she is not an obvious child at all) from there we were put on a waiting list to be seen by a psychologist who we saw for 3 visits each with another waiting list for each visit Frustrating but I wasn't really throwing a fit about it because my daughter was in private therapy without the diagnosis and was doing well in school so I didn't see the point in rushing to get a diagnosis. I did request the school evaluate her before they got the medical diagnosis and they did not feel she met the criteria for autism for she is getting no services or IEP through the school system. Which we are going to be fighting (I feel strongly she needs at least Speech Therapy through the school system).

I get what your saying about struggling whether to push a diagnosis and I'm not sure I know the right answer. My daughter was in the room when I was discussing a lot of my concerns with the doctor and it really broke my heart to have her hear all that. I wonder whether it was worth it. She was really anxious about the whole thing and it has taken like a week to get back to her usual self. I think in the end it was for us.....I have been living in turmoil of does she or doesn't she and at least it was some closure for me. I think it will also help the school in some ways, teachers who might have been annoyed by her taking back, strict routine stuff might be a little more understanding knowing that she has autism if that makes sense. I am also going to be pushing school for therapy for her and having a medical dx will help with that. I think when she is older we can tell her about her autism and it might be helpful for her to have that information.

Hugs to you, I know its a hard decision and I'm glad that he is receiving therapy even without a diagnosis. Maybe you can ask for a psychologist to test her instead of developmental medicine. It was quite a different vibe and they spent tons of time with her.

posted almost 5 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in