My son Eli was just diagnosed with ASD. I don't have much info yet, but we will start in home visits next week. Eli is non-verbal, and has serious tantrums in social settings. My question is, what now? What should we be doing while waiting to get started?
I'm just a little overwhelmed with emotions right now
Thanks, in advance
Thank you, thank you, thank you! I love this site! It is so nice to feel understood ❤️
Thanks so much @A MyAutismTeam Member
:)
Your welcome! Lost and sad...those are feelings I am familiar with. Trust me- it will get easier because you will see Eli growing and achieving in his own unique way and it will give you hope . I would suggest not comparing him to anyone but himself. His progress is his progress and who he is is beautifully unique. Embrace Eli for Eli. I've grown to truly adore and cherish my Autistic sons for all their quirkiness's. If I had a pill that would make those quarky things about them go away, I would not have them take the pill. They are on medications for anxiety and attention, but it doesn't change them. It actually makes their awesome personalities come out ! It helps them be the best versions of themselves.
While some parents like to brag about sports trophies their typical kids gets, I like to "brag" about how Cameron is spunky, incredibly agile, and always eager to be active. He also loves his brothers and cousins and always wants to be with them. Tyler is so enthusiastic about things he loves and enjoys helping people understand computers and math.
While you are navigating your community for support, it's good you stay in touch with people online on this site. it seems to be a good way to get the support you need. I just popped on for the first time in over a year yesterday! I didnt' realize it would be helpful for me as well!
stay in touch and never lose hope! you are a special mom! A warrior mom!!
Hello fellow warrior mamma! I have 3 sons, my 10 and 8 years olds are autistic. My 13 year old is typical. I remember where you are at now. it's overwhelming and stressful and you may be grieving as well. It's all normal and what I would suggest is to take each day as it comes and find support everywhere. It looks like you have gotten some good suggestions so far. It really all depends on your community as well. I started to feel more supported and less alone when I connected with other mothers in the school district who have children on the spectrum. Now, their sons are friends with my (middle) son and it makes life easier when we need support or want to brag about our boys accomplishments (using a full sentence for example), or just VENT!! Find yourself a therapist (I wish I did that earlier ), to help you through this. Do you like your sons neuro? I could go on and on, but I don't want to overwhelm you with information. my email is [[email: [[email: [[email: [[email: (Email address can only be seen by the question and answer creators) if you want to connect further. All the best to you fellow warrior mom! Eli will be ok! and so will you! just keep reaching out for help and taking it!! Sarah
@A MyAutismTeam Member
I was wondering if there's a site to see where MEDMAPS doctors are in each state? I will check out those above links in case that's what I'm looking for. Just saw this and read about them often from other autism moms so I figured I'd look into it and see if it's something we are interested in once we come back stateside.