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A MyAutismTeam Member asked a question 💭
Sunnyvale, CA
July 11, 2023
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Answer Summary

Members connected over the urgent and often overwhelming task of setting up special needs trusts for their children with autism, with several... Read more

Members connected over the urgent and often overwhelming task of setting up special needs trusts for their children with autism, with several sharing that they established theirs when their children were young (ages 5, 11, and 16) and updated them as milestones approached, particularly the critical transition to age 18. Many members expressed they were in the early stages of planning or feeling behind, with one parent new to autism candidly asking what a special needs trust even was, prompting the community to warmly share resources like Forbes articles and clarify that it differs from a will, requires specialized legal help, and works alongside guardianship agreements to protect a child's financial future. A recurring theme was the shared desire to remove worry and ensure long-term care, with practical advice to seek attorneys specializing in special needs planning and understanding state-specific guardianship rules.

A MyAutismTeam Member

It’s not a will. Here is a useful article that explains everything. You would have to go to an attorney who specializes in this.

https://www.forbes.com/advisor/life-insurance/s...

Welcome to MAT! Feel free to ask any questions.

July 11, 2023
A MyAutismTeam Member

Guardianship in certain states is done at 15 and other states at 18 but it’s a lifelong document and the age of the child has no bearing on the document it’s good for the life of the child however you can add other sister or brother to it once you are too old to look after

August 11, 2023
A MyAutismTeam Member

Yes I have, you want to take the worry out of worrying.

July 12, 2023
A MyAutismTeam Member

Yes, I did when my son was 5 years old and then updated it again when he turned 16. He will be 18 in December.

July 11, 2023
A MyAutismTeam Member

I have looked into it last year. We will set it up soon. Its on our to do list!

December 16, 2023

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