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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Phoenix, AZ

I am still waiting to get into our autism center to get further information on any of this. We got a very vague diagnosis, probably no different than most. But this is just killing me. He is having a very hard week. I feel I have nothing more to give and I am drawing on an empty tank. I feel very much in the dark on all of this. I guess I am just trying to understand any of it at this point.

October 16
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A MyAutismTeam Member

https://phxautism.org/
https://centerforautism.com/locations/arizona-c...

Signs and Symptoms of Autism Spectrum Disorder

Centers for Disease Control and Prevention | CDC (.gov)
https://www.cdc.gov › autism › signs-symptoms
May 16, 2024 — Other characteristics · Delayed language skills · Delayed movement skills · Delayed cognitive or learning skills

Current Classification: The 3 Support Levels (DSM-5)

Instead of distinct categories, current medical standards rate autism by how much support a person needs:
• Level 1: Requiring Support (Formerly "Mild" / Asperger’s)
• Speaks in full sentences and handles basic communication
• Struggles with social-pragmatic skills (e.g., awkward timing in conversation, missing subtle social cues)
• Inflexibility in routines causes noticeable disruption in at least one context
• Often engages in "masking" (hiding autistic traits to fit in), which can lead to burnout or anxiety
• Level 2: Requiring Substantial Support
• Marked deficits in verbal and nonverbal communication
• Speaks in short sentences or relies on alternative communication tools
• Inflexibility, rigid routines, and frequent meltdowns or shutdowns when facing unexpected change
• Pronounced repetitive behaviors and intense sensory reactions
• Level 3: Requiring Very Substantial Support (Formerly "Classic Autism" / Severe)
• Severe verbal and nonverbal communication impairments (may be non-verbal or use very few words)
• Extreme behavioral inflexibility and severe distress over changes
• Constant repetitive movements or self-soothing behaviors
• Daily need for substantial support with personal care and independent living

Arizona - Center for Autism and Related Disorders (CARD®)
Arizona - Center for Autism and Related Disorders (CARD®)
Autism Society of Greater Phoenix - Support for all affected by autism
Autism Society of Greater Phoenix - Support for all affected by autism
https://www.cdc.gov
October 17
MyAutismTeam

First, take a breath. What you're feeling — exhausted, in the dark, running on empty — is something so many caregivers experience, and it makes complete sense. You're doing something really hard, and you're doing it while also trying to learn. That matters enormously.

Let's shed some light on things. Asperger's syndrome is Show Full Answer

First, take a breath. What you're feeling — exhausted, in the dark, running on empty — is something so many caregivers experience, and it makes complete sense. You're doing something really hard, and you're doing it while also trying to learn. That matters enormously.

Let's shed some light on things. Asperger's syndrome is no longer a separate diagnosis. Since 2013, it was folded into one umbrella term: Autism Spectrum Disorder (ASD). So if someone was previously diagnosed with Asperger's, they would now simply be diagnosed with ASD.

Instead of different "types," autism is now described using three support levels:

- Level 1 – Needs some support. Can often communicate in full sentences but may struggle with back-and-forth social interaction
- Level 2 – Needs substantial support. More noticeable challenges with communication and repetitive behaviors
- Level 3 – Needs very substantial support. Communication may be very limited, and changes to routines can cause significant distress Across all levels, autism commonly involves challenges in two main areas:

Social communication, which can look like:
- Difficulty reading body language or facial expressions
- Trouble making or keeping friendships
- Challenges with back-and-forth conversation

Repetitive behaviors and restricted interests, which can look like:
- Strong preference for routines
- Intense focus on specific topics
- Sensitivity (or under-sensitivity) to sounds, textures, lights, or other sensations It's worth knowing that support levels aren't permanent labels — they can change over time as a person grows and develops new skills or coping strategies.

Every autistic person is genuinely unique, which is why the "spectrum" part of the name really does mean something. Two people at the same level can look very different from each other day to day.

Hang in there. Getting clarity on this takes time, and you're already asking the right questions.

October 16

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