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A MyAutismTeam Member asked a question 💭
San Diego, CA

Our 5 year old son will go to sleep at 10pm.. sleep for about 4 hours and be back up for the rest of the night and will not try and sleep again until about 5pm the next day! He is ASD and is very hyper during the day. I was wondering if anyone has the same issues and if they have any advice that has worked for them.

April 9, 2012
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Answer Summary

Members shared their experiences with sleep challenges in children with ASD, with many finding that melatonin helps their child fall asleep,... Read more

Members shared their experiences with sleep challenges in children with ASD, with many finding that melatonin helps their child fall asleep, though several noted it may not keep them asleep through the night unless using a slow-release formula. Several members offered practical strategies including establishing consistent bedtime routines, avoiding sugar and caffeine after lunch, requesting a sleep study to rule out breathing issues like enlarged tonsils, and considering the timing of medications since some can cause nightmares or restlessness in autistic children. A recurring theme was the exhausting trial-and-error nature of finding what works, with members emphasizing the importance of consulting doctors before trying supplements and sharing resources like free toolkits from Autism Speaks.

A MyAutismTeam Member

We use Melatonin from time to time but keep in mind that it is short-acting and will help someone GET to sleep but not STAY asleep. There is a caveat, however... look for a Melatonin product that is SLOW RELEASE. You may have some luck with it :-) I've also been told by a developmental paediatrician that Melatonin works best when one is in the dark as it is the absence of light that stimulates our bodies to naturally produce its own Melatonin. Please let me know how you make out :-)

April 10, 2012
A MyAutismTeam Member

routine works for us, bath, meds, bed...but before he was having night terrors with hallucinations CAUSED BY Singulair...now we give him singulair in the mornings and he has no problems at all. MANY drugs will cause hallucinations in autistic children and restlessness. Cut out any sugar or caffein after lunch or all together as well. I give my son Vanilla Soy Milk at bedtime...Good luck!

April 10, 2012
A MyAutismTeam Member

I find that melatonin given at like one hour before bed is the BEST thing for my Aspie son. He would sleep for about 3-4 hours a night and the melatonin keeps him asleep.

April 10, 2012
A MyAutismTeam Member

I think we tried everything but standing on our heads to try to keep my son asleep. He still has trouble going to sleep and staying asleep. Some of the meds that he has tried gave him nightmares and that really didn't help. He's on a pretty good combo now, one especially for sleep. I don't like to rely on meds too much, but after years of not sleeping well, we had to try something!

April 28, 2012
A MyAutismTeam Member

Ask for a sleep study. The sleep cycle is being interupted before he can get into a good rem sleep it sounds like. For my two youngest the answer was simple but scary...I did try melatonin with success...and since it was an over the counter "natural supplement" i figured that = safe....my kids had enlarged (not infected..just born with large tonsils) obstructing their air way..the doctor said the sleep cleycle is interrupted when the brain releases a signal that breating has become compromised...waking the person....the melatonin masked it and had them sleep through it...very dangerous...they got the tonsils out...this may not be why your son wakes up...but better to be safe than sorry...demand the sleep study...the moral of the story...ask a doctor before you give any sulplements

April 15, 2012

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