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I was just wanting to know the future? :) I an still very confused about what all these diagnosis and label mean for my son and our family. I don't know if this is something they grow out of? or does it get better? what it even is really? I guess my biggest fear is that he will never grow up to have a "normal" life like his sister will ? Will he always be dependant on someone?
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Members opened up about their fears and hopes for their children's futures with PDD-NOS and autism spectrum diagnoses, sharing a mix of... Read more
I was asking myself the same questions just a few weeks ago. What's gonna happen to my boys when I'm gone? Will family members be the only ones Joey will get hugs and kisses from. Could he fall in love one day? Will he ever go to the bathroom and brush his teeth on his own? Joey's Mod-Severely Autistic. James was first thought to be PDD-NOS and now ADHD. He's a very needy boy. Super smart and caring. They're 7 year old fraternal twins. I was losing my mind because it all hit me suddently at 1am. I'm laying there hugging Joey as he recites the entire NEMO movie in his sleep and thinking "Is this it?" It nearly broke my heart into pieces. I called a dear friend who has a 17 yr old boy...similar diagnosis for Autism and rushed over to see her. Not more than 5 minutes in her sons presence did I feel the weight being lifted from my shoulders. He was engaging, articulate, self-sufficient, a bit of a potty mouth, but funny like you wouldn't believe. I felt hope for the first time in a very long while. I now see both my boys either living independently, being roommates or assisted living, but I see them doing very well and loving life. Whose life is normal anyway? I learned by visiting my friend and her son that I can't compare each of my children's successes/failures and lives to the others. Each one will shine in his own right and as a family we'll support eachother through life as we would if a diagnosis didn't exist.
Sorry to go on forever, but there's hope. I feel it in my bones!!.
There is also a movie: Temple Grandin. It si well worth watching, I thought.
My son was 18months old diagnosed with PDD_NOS, he is now 11 and has an Aspbergers diagnosis, ADHD for due to the years of therapy and trials and error and success.. we have made grate progress, we have good days and bad days , Logan can talk and that is something that took some doing.. understands him self what his needs and challenges are We had gone camping this week and a couple said they could not even tell he had challenges. .When he was younger it was difficult to picture how we were going to accomplish this "Normal Life for him what does that even look like? He was still developing = the brain is amazing, keep up with sensory therapys. and pro-biotics and behavior modification therapy. Take this thing called Autism day by day, one foot in front of the other, grab one rung at a time with any diagnosis and the behaviors meds and socializing , Trust in answers that come in tomorrows seek advice seek counselors seek new breaking medicines. The more I reached out to others and built a solid group of support for me and for our family the better tomorrow looks.
@A MyAutismTeam Member email me anytime, I am sure we have very similar stories... [[email: (Email address can only be seen by the question and answer creators)
@A MyAutismTeam Member thak you so much for your response, as much as I wish none of us had to go through this it is nice not to feel so alone:) my sons 2 assessment is tomarrow and then we will know where he falls on the spectrum, and where we go from here? I'm hopping maybe my husband will be more excepting of all this once we know where we go from here?;) thanks again I'm very greatful:)
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