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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 2, 2013
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Answer Summary

Members offered thoughtful guidance to a parent wondering whether their child, initially diagnosed with PDD-NOS at age 2.5 while nonverbal and... Read more

Members offered thoughtful guidance to a parent wondering whether their child, initially diagnosed with PDD-NOS at age 2.5 while nonverbal and now verbal at nearly 9 years old, should be retested to see where he falls on the autism spectrum today. Several members recommended a comprehensive neuropsychological evaluation to assess his current strengths and challenges in areas like processing, memory, fine motor skills, and IQ, as well as consulting a pediatric developmental specialist or neurologist, especially given his intermittent tics that may warrant separate assessment. A recurring theme was that autism is a lifelong diagnosis regardless of progress, but reassessment can help clarify his specific needs, guide support services, and answer questions about how his profile may have shifted as he developed verbal skills and academic strengths while still experiencing challenges with comprehension and social engagement.

A MyAutismTeam Member

I would suggest a neuropsychological evaluation because that will look at the specific strengths and challenges he has. Things like visual and auditory processing, working memory, fine motor skills, IQ, etc.

April 2, 2013
A MyAutismTeam Member

I guess my question is are you concerned about your child's dianosis. Many people don't want their child rediagnosed because they may potentially "lose" services. Esp in cases where the diagnosis was PDD/NOS but on the other hand how is your child doing? Do you feel this is not accurate. But keep in mind being Verbal/non-verbal is not the only diagnostic symptom... my son has really very scattered abilities. You can always check with a pediatric developmental specialist to see where your child is in their development. As my child's development (who is pretty low functioning) is checked every six months I don't see any qualms with a reassesment.

April 2, 2013
A MyAutismTeam Member

If he had a speech delay (even if he has now overcome it), then by definition he would not get an Asperger's diagnosis. I'm not sure what would be considered milder than PDD (Non-Verbal Learning Disorder? "Broad Autistic Phenotype"?)

April 3, 2013
A MyAutismTeam Member

Thanks alot Candid, dr called and will soon have an appointment with a neurologist in Memphis, maybe we can se if its ongoing thing.Also his dr sends to think that maybe because he was non verbal at the time of diagnosis that maybe now that he is verbal, doing well in school although does not talk at school unless asked a question that he might fall somewhere else under the umbrella? Does that sound possible? I know he is Autistic, just wondering if pdd/nos would change since he had came so far from the age of 2 1/2.

April 3, 2013
A MyAutismTeam Member

Sorry meant Thank you Candice!

April 3, 2013

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