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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Philadelphia, PA
December 25, 2012
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Answer Summary

Members shared that many friendships faded after their child's autism diagnosis, with some losing nearly all their friends and even family... Read more

Members shared that many friendships faded after their child's autism diagnosis, with some losing nearly all their friends and even family connections due to the demands of caregiving and frequent last-minute cancellations. Several members described the isolation that comes from not being able to participate in typical social activities like playdates or spontaneous outings, compounded by others' lack of understanding about severe autism, meltdowns, and the intensive planning required for any outing. A recurring theme was the emotional exhaustion of trying to maintain friendships while also navigating judgment from those who viewed autism as simply poor parenting, leaving many parents feeling deeply alone in their seven-plus-year journey of advocacy and care.

A MyAutismTeam Member

Let's be cyber friends!

December 25, 2012
A MyAutismTeam Member

I have lost almost all my friends. And my family. I could never do things like play groups or even go anywhere when Liam was younger. Now he's 17 and I think I'm just too exhausted to keep trying to make friends when it never works out.

December 25, 2012
A MyAutismTeam Member

yes, probably due to my withdrawal and not able to talk about the diagnosis, so know one knew why I was absent or struggling or having my own mood response difficulties. I stopped having gatherings in my home and the housekeeping got to where I wouldn't have anyone over. I knew who (even family members) did not believe in neuro diagnoses being anything more than poor parenting so that made sharing very limited. It's been a lonely 7 yr journey trying to learn and advocate for my child.

January 2, 2013
A MyAutismTeam Member

@ midlomommy. I don't understand your reply. Could you elaborate a little more

December 26, 2012
A MyAutismTeam Member

That's so true. We have to adjust our schedules according our children's behavior.

December 26, 2012

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