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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Rio Rancho, NM

My 9 year old son was diagnosed last year with AS. He has always been a big boy (at 9 he is 5'1, 185, and wears a mens 11 shoe).

He seems to have a problem with constant hunger. He can eat dinner, and be asking for dessert before his plate is cleared. He will try to eat 6-8 snacks from the time he gets home from school until dinner. It is relentless.

Last night we went to an all you can eat salad bar restaurant. He devoured his salad, a bowl of soup, a sweet potato, a baked potato, a bowl of… read more

September 4, 2013
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Answer Summary

Members connected over the challenge of managing constant hunger and overeating in children with autism spectrum disorder, sharing that... Read more

Members connected over the challenge of managing constant hunger and overeating in children with autism spectrum disorder, sharing that sensory processing issues can prevent kids from recognizing fullness and that behaviors like food hoarding or sneaking extra servings are common. Several members offered practical strategies including redirecting to alternative sensory activities, limiting access to certain foods, monitoring portions at buffets, and pursuing medical testing for conditions like Hashimoto's thyroiditis, Prader-Willi syndrome, or systemic yeast, with some finding success through thyroid treatment or ADHD medications like Vyvanse. A recurring theme was the frustration of having pediatricians dismiss legitimate concerns and the importance of advocating persistently for thorough testing, as underlying medical conditions rather than poor parenting often drive these eating behaviors.

A MyAutismTeam Member

Prader-Willi? Has he been tested for Fragile X syndrome?

September 5, 2013
A MyAutismTeam Member

Our son is 15 yrs. now with Aspergers, OCD,ADHD, Tourette's, SPD, and 5-7 sleep disorders and an autoimmune disorder -Hashimoto's thyroiditis. He ate sugar and carbs and hoarded food in his room...and would get up at night and raid ice cream, etc. We found him putting on several pounds each Dr. visit. His birth-mom admitted to the same problem and we started testing him for diabetes, glut 1 transporter disorder (which involves a lumbar puncture, and checks the sugar in the spinal fluid to see if it gets to the brain.) My son has no control in a buffet and would pass by the dessert table and eat 3-4 before he got back to the table with more (but visibly only 2 deserts). He would somehow feel like he needed to get his money's worth at an all you can eat buffet. He would go throw up in the bathroom (just because he had to, he did not induce it) and come back to eat more. When we discovered this we started monitoring his food and made sure one of us headed up with him as we usually face these eateries with large family groups, and everyone disperses and he is not little anymore to have us hold his plate. We told him he needed to eat some main dish foods, and some vegetables and salads before he could go to the desert table. We stressed that it probably did not feel good to throw up, and it really is not good for you, etc. We avoid all you can eat places often now, but my husband and I have to both be aware and step up to monitoring his food. We also have to slow him down eating because he crams it all in his mouth so he can go back for more and there has been a nice discussion here recently at how that is autism too. Our doctor checked my son's thyroid but she discovered his thyroid stimulating hormone was high and put him on medicine and we did not understand the Hashimoto's so I'd recommend you have him checked by an endocrine specialist who looks for antibodies; or get your doctor to order the test for all thyroid disorders or something. We found out about the Hashimoto's when we went beyond, with the endocrine specialist to check for the antibodies. My son has been treated for autoimmune issues this year and he actually has lost a few pounds for the first time ever. He is 5'9" and 160 pounds now and is not "pigging out" as much anymore. You can start by talking to your doctor about your concerns in having an obese child. My son's birth parents are tremendously obese and they both now know they have hashimoto's thyroiditis and with medication his birthmom said she lost another 36 pounds. I'm not saying your child has what mine has, but I'm saying you can take an active role in getting answers and call it preventing obesity and get some medical tests looking for a cause. It was said to me that children hoard food perhaps when they have faced hunger. That was never the case for us as he was adopted at birth, etc. I see a huge genetic link though and know that it would not have even been discovered if I hadn't looked harder myself.

September 5, 2013
A MyAutismTeam Member

Have you had your son checked for prader Willie syndrome? It's a syndrome where the person never feels full regardless of how much they eat.

September 5, 2013
A MyAutismTeam Member

Our son has had issues with food seeking/over eating for some time. We believe part of the reason he does it is from boredom - he doesn't know what else to do with himself. We worked with a therapy team who helped us identify alternative activities, and to teach him to request/seek out those activities as an alternative to eating.

We will present him with his DynaVox, and allow him to choose alternative activities, when we observe him food seeking excessively. Some of the alternative activities are sensory integration techniques we learned from his physical therapist, which help calm/redirect him from eating to more desirable activities.

September 4, 2013
A MyAutismTeam Member

my son would not stop eating we have him on vyvanse medication for add and he lost 20lbs and he is not hungry all the time and his behaviors are less

October 10, 2013

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