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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I posted a question a couple months ago about SSI and my 8yr old grandson. My daughter applied August 13th. The intake person told her she felt they would not request additional evaluations because she had so much documentation. Yesterday she got a large packet. SS had made three different appointments for her son. Speech, Psych and some other kind of testing.I am wondering if it is worth putting him through all this. He is high functioning, attends a full inclusion program with an instructional… read more

October 5, 2014
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Answer Summary

Members explained that Social Security typically requires speech, psychological, and developmental evaluations as standard procedure when... Read more

Members explained that Social Security typically requires speech, psychological, and developmental evaluations as standard procedure when applying for SSI benefits for children, especially when prior testing documentation may be incomplete or outdated, and emphasized that these assessments cannot remove an existing medical diagnosis but rather help establish the child's needs. Several members shared their own experiences navigating the SSI application process, noting that approval is easier with extensive documentation, that benefits are income-based, and that hiring a Social Security attorney can be helpful if initially denied, though many children are approved on the first try with proper paperwork.

A MyAutismTeam Member

No You can get SSI at any time there is no age limit. You also do not need an attorney most times when it comes to children. I will say it is easier the younger they are and the more documentation you have.

Getting disability for an adult is much harder because they tend to scrutinize things more. I have seen them give autistic children s hard time when they are teenagers close to adulthood as well because they wonder why no one tried getting it an early age.

October 7, 2014
A MyAutismTeam Member

Oh and those tests aren't anything bad. Usually questions. Tests them on what they can or cannot do compared to standardized tests etc.. with accordance to their age group.

October 6, 2014
A MyAutismTeam Member

Yes they need these evaluations. It is standard if the child has not already been tested. If they have then you just show them what you have. Otherwise you will get denied. They need the documentations on the child progression. My son had these testings done at 3 for placements in earlystart preschool special ed (part of his IEP), so they used those.

October 6, 2014
A MyAutismTeam Member

I have never heard of them doing that before, but that is why it is important to have the testing done prior to applying, and also have the doctors write up letters on your behalf.

Either was they cannot take away a medical RX.

October 6, 2014
A MyAutismTeam Member

I have noticed many parents have questions about SSI. So for anyone interested, I started a support group for parents of children receiving, or going through the process to receive SSI. Come join us! https://www.facebook.com/groups/306167079807208/

August 5, 2017

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Riverside, CA

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