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What Is The Most Important Thing Newly Diagnosed Parents Should Know?
A MyAutismTeam Member asked a question 💭

My four year old son was diagnosed at three in September 2014. What is the most important thing for newly diagnosed parents to know?

posted June 10, 2015
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A MyAutismTeam Member

Get help rt away. Call your regional center for early intervention, occupation therapy, speech. See a dan dr rt away. This is the biomedical intervention. They ck for food, allergies, yeast, nutritional deficiency, and a lot more. Don't stay in denial mood for long. Get support, and remember to take care of yourself, because autism is a journey. Be BLESS.

posted June 10, 2015
A MyAutismTeam Member

Full acceptance is number one to me because if the parents do no accept their child is different they can't fully help.

Second be prepared for waiting because appointments are always a long wait. Also don't expect that you are going to find all the answers you are looking for sometimes there are not to be found, your child is autistic and it doesn't matter how or why it just matters they are and you can help.

Apply for help by means of state agencies and SSI you will need whatever you can get. Be prepared to do your own research and legwork because no one else will do it for you. Use places like this to ask questions because family and friends are not going through what you are so even if they are well intentioned they often have no clue.

If you find you are in a bad state for services don't waste time trying to make it work unless you have the means to do so. If you have the money and can pay for services then stay if not consider leaving.

Finally the clock is ticking, the earlier you get help and the more services you can get will make all the difference in the world. Prepare to make tough choices and sacrifice things for yourself so your child does not have to.

posted June 11, 2015
A MyAutismTeam Member

Keep data, keep records, take video lots of videos (for comparison later on). Don't expect it to be easy, but also don't accept no , fight and fight some more. ABA, Speech , occupational therapy, physical therapy. These are all great, but if your child is in need of biomedical care, all the speech therapy in the world can't fix gastro issues. We do Gluten and dairy free. It is recommended by Autism specialists, I wish we had started the diet earlier, that is a huge regret of mine bc our results after the change to GF/CF were rapid . Don't always take a doctors word for something. Do your own research. and do it often , but don't drive yourself mad. You can help your child but it a journey not a race. Know that sometimes the best therapy is your love and patience. The first year is hard....well it was for us, but we have been researching and learning and doing all the therapies we can and we are happy with our progress. Everyday is a new day!

posted June 12, 2015
A MyAutismTeam Member

to take time for you. At first I would drop Isaiah off and cry in parking lot then drive to beach and cry some more. A few months later I asked my self how can I help him? I realized that if I relaxed and did things Mom wanted or liked I can then be energized or relaxed for him. set a schedule for him to go to bed and then date night even if it was a movie or a glass of wine, Me time or US time was vital.

posted June 14, 2015
A MyAutismTeam Member

Remember YOU know your child better than anyone and YOU will probably know what is best for your child, don't let anyone convince you differently!! And Enjoy your trip to Holland. Look it up: My trip to Holland by Dear Abby

posted June 14, 2015

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