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To Try Or Not To Try Biomedical
A MyAutismTeam Member asked a question 💭

Hi dear fellow parents
I wish to hear your thoughts and opinions as I am still undecided, even though every case is different, all opinions will be highly appreciated.

In Malaysia, biomedical is still limited, its about 6 hours drive away from my house. Very long waiting list, to make an appointment, need to be about 4 months in advance. And believe its pricey.

About my son -
- He's turning 7 soon
- Diagnosed at around 3 yrs old, high functioning autism.
- Some very mild stimming behavior… read more

posted September 7, 2018
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A MyAutismTeam Member

We went to a naturopath one time. I found it a very valusble experience to get special vitamins. I already had genetic testing on myself from pregnancy so I could share that info with them. I have not gone back a second time because it was $300 cash and I don’t want to pay that again yet- I can order vitamins and probiotics off the Internet. There’s a lot of theory now about gut diversity. In other words, you have to make sure to get different types of food into his diet (which also might help with constipation). My kid gets stuck on one type of food. For example, if he could eat cheddar crackers for breakfast lunch and dinner, he would. Every once in awhile, I will remove whatever food he eats a lot of completely from our house and it makes him change up his diet just a little. I am also a big fan of vitamins and I believe mine is mildly affected by MTHFR, so we were able to get special vitamins from the Naturopath that had special for of folate that he could digest. We also did probiotics. And smoothies that had veggies and fruit in them (he eats no fruit, veggies outside of applesauce and smoothies). The Naturopath also gave us a special diet, which I never followed, but I do try to cut back on heavy processed stuff and soy (like we might eat a natural organic peanut butter as opposed to the popular Jiff brand which shockingly had soy and some junk in it). We did a stool test as well- he had a lot of bad bacteria like clostridium - like an overgrowth compared to other kids his age- the bad bacteria likes to eat the nutritious food before it gets a chance to get absorbed by his gut and body (is how it was explained to me). So then theoretically, if there’s a lot of bad bacteria in gut, even if he eats nutritious food it may not be absorbed by his body because that bacteria eats it first. I made homemade sauerkraut for awhile and put the juice in his smoothie which I believe helps with digestion and getting good, local gut bacteria in there. I bet you can find homemade pickled products in Malaysia to try. That stuff is so good for you (be careful not to get a bad batch - that can make you sick). I say do testing which focuses on the gut, say no to other expensive tests, and you may only need to go once or twice to figure out what to do. In general, if they feel better and are getting the right nutrition, that has to help them function. I am not a doctor or researcher but these are the general theories around gut health as I understand them. This is new research and if you ask medical doctors about it, they can follow the logic but it’s not really what they specialize in so very few are interested in it. I feel like it helped my son. The behavior therapies helped the most, but monitoring nutrition and keeping the bad bacteria at an acceptable level, I believe, also has helped us in this journey.

posted September 8, 2018
A MyAutismTeam Member

At the moment, we are just viewing biomedical as possible option, but unsure of the effectiveness in general due to lack of feedbacks from parents , other than reading it on websites, which we are cautious not to take everything for real.

On the other hand, maybe our kid is behind by a few years in his maturity development and may need time to grow up and regulate himself better

posted September 8, 2018
A MyAutismTeam Member

Personally I have never heard of this treatment, now my question to you is what is your gut telling you? If you truly think that he needs this treatment than that's your answer. If you feel like this would honestly be too much for your family and there really isn't that much of a benefit to doing it than I wouldn't do it. From how you described him I would say he is doing fairly well with out it. With my 13yr old she started off low functioning and with a lot of therapy most days you would never know she is on the spectrum. Now that being said she does have days with the temper and the melt downs. Those are our bad days. I wish you nothing but the best of luck on your journey.

posted September 7, 2018
A MyAutismTeam Member

@A MyAutismTeam Member

As far as I know, biomedical is an approach which is conducted by specialist doctor who specializes in such area to perhaps do a blood test and advise solution on what the child needs to be put on
- could be medications, or certain diets, or even shower with certain kind of salt water etc.
As I had heard before, you may need to follow a very strict and thorough rules for medication, or food.
Not easy to follow.

My concern is that and decided not to go through this path, if put on medication, the moment the medication wears off, the child will be back to his normal self. So its not a cure in my view.

He's currently in pre-school and they do have many break intervals for students there.

posted September 25, 2018
A MyAutismTeam Member

Your son sounds very similar to mine. I don't know what "biomedical" means exactly. Are you looking to put your son on medication? My son often has trouble with speech similar to what you describe in your son. I would just be thankful that he is making progress. Will your son's school allow him breaks when he gets to the point of not focusing on work? Sometimes letting the child get up and taking a 10 minute walk in the halls can help refocus. I had to teach my son to tell his teachers when he needed a break.

posted September 24, 2018

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