Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Jonesboro, GA

My 2.5 year old Asd son, has had 2 different moments where he looks like he spaces out and is unresponsive no matter what i do. I call his name, tap his shoulder, wave my hands in front of his face, he won’t blink nothing!! I’ve seen that looks like absent seizures! It happened once last month after a sneeze! Then once today after he let go of a big poop! (Sorry for the tmi). I mean is it possible to be spaced that apart? Hubby thinks I’m being paranoid i think I’m right that it is seizures… read more

November 3, 2018
 · 
Reactions

Answer Summary

Members strongly urged a parent concerned about possible absence seizures in their 2.5-year-old with ASD to trust their maternal instinct and... Read more

Members strongly urged a parent concerned about possible absence seizures in their 2.5-year-old with ASD to trust their maternal instinct and see a neurologist immediately, with many sharing that early intervention is critical since seizures only show up during testing when they are actively happening. Several members recounted their own experiences with children who had similar spacing-out episodes, emphasizing the importance of documenting episodes on video, pursuing EEG testing even if initial results are inconclusive, and advocating persistently when doctors dismiss concerns. A recurring theme was validation of the parent's observations, reassurance that seizures are common in children with ASD, and encouragement to act quickly to prevent potential brain damage or developmental regression.

A MyAutismTeam Member

Before we had the eeg done, we "practiced" with a stuffed animal - putting cords with tape on the stuffy's head - which is one of the things they did for our nephew's eeg. They also put some pads on his chest, which were a little uncomfortable coming off. Your's is kind of young, but you might try to prepare him as best you can. It is controllable, and the sooner you get treatment, the better. I think my nephew missed most of what was being taught in elementary school due to him blanking out periodically. Good luck!

November 10, 2018
A MyAutismTeam Member

My son is 15 and was diagnosed with epilepsy in June. We were notiicing something wasn’t quite right took him to his neuro and he said it was puberty and to keep an eye on him. I 100 percent didn’t believe him and did numerous tests on him. Couldn’t find anything it started just like what you are experiencing. I thought well he is autistic maybe it’s just autism but in June it got worse when we were on vacation in Mexico I did what I could to help him while there I also video him and his episodes I showed his pediatrician as soon as we got back and sure enough absence seizures . We are seeing a new neurologist try and video it and get him to the dr

November 3, 2018
A MyAutismTeam Member

I will take him to see a doctor. .. . I would trust the mommy intuition every time. I would ask myself two questions; what’s the worst thing to happen If I bring him to the doctor and he doesn’t have anything, & what’s the worst thing to happen If I don’t bring him to the doctor and it is siezures?
I hope this helps.... and I will be praying for it to be nothing 💙

November 3, 2018
A MyAutismTeam Member

That definitely sounds like absence seizures. Get him to a neurologist as soon as you can. We are legal guardians for my great-great nephew, now 13, who probably had them since age 2, but wasn't diagnosed until he was 7. We took a video of his seizures and brought them to the neurologist. He prescribed an anti-seizure medication (Zarontin) which was too strong, so we changed neurologists. She is very conservative, and started him on a low dose of the generic for Lamictal, gradually increasing the dosage. We had a sleep test every year, and gradually the activity resolved when he was 11. We still keep him on the medication since it's also a mood stabilizer, and we're approaching puberty (yikes!). As he grows, the dosage very gradually decreases, but we will probably keep him on until he's at least 15, because it really does make a difference in his mood. We always let him take his pill on his own until he decided not to take his meds for about 2 weeks - I accidentally discovered them in a wastebasket, and boy, did his mood change for the worst! Back on them, and he's much more regulated. So, don't wait. I don't know how much damage was done in his early days at school, but he's HFA, developmentally delayed, and intellectually disabled. Also, take a look at videos of absence seizures online. Trust your gut!

November 10, 2018
A MyAutismTeam Member

Hi! Our therapists mentioned that my son may be having seizures because he was spacing out as well. Same exact way you describe. We took him for an EKG and it came back negative. It seemed like it had spiked for a while. He still does it, but not as frequent. Often times it was when a lot was going on or happened at once. Almost like his brain decided to go idle so it can catch up!

For your peace of mind, getting an EKG wouldn't hurt. This would rule anything out. It is common though, and what I was told is that at that age, there's nothing they can do for "absence seizures" and that kids normally just grow out of it around 11-13 years of age. Again, for your own peace of mind, I'd have them do an EKG. I know I was stressed about it until I got the results back.

November 6, 2018

Related Questions

View All
A MyAutismTeam Member asked a question 💭
Princeton, IL

A MyAutismTeam Member asked a question 💭
Miami, FL

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In