I am pleasantly surprised that you have heard of Myhre. At the most recent Zoom meeting on Myhre research it was revealed they are working on a process that would transfer genetic information from one parent's chromosome to the other. If they can do that for my grandson, it will be a game changer. It won't reverse the biochemical damage that has been done but it will prevent further damage. I have got my fingers crossed.

He has already had an echocardiogram and had his DNA sequenced.

Our grandson is one of less than 300 in America with Myhre Syndrome, a very rare genetic disease.

He's been in ABA for three years. He developed normally for two years then regressed. It has been very difficult for his mother to deal with this. She is seeing a psychiatrist. He seems to comprehend the requests we give him but he is frequently not compliant. I am of the opinion that there are very few on the spectrum that are more autistic than he is.

Thanks but my wife is currently terrified. She has resorted to slapping him which we never did with our own children. BTW the grandson lives in Louisiana.