Connect with others who understand.

sign up log in
About MyAutismTeam

My Perspective: Our Story – My Tristan

Posted on July 01, 2016
Article written by
Juliet

He was extremely colicky as an infant. Midnight car rides almost every night, he slept no longer than a couple hours, at most, during the day, and began digestive issues as young as two months old. Literally, my husband and I were tired and grumpy all the time hoping this stage would someday be behind us.

Tristan, now four years old, hit all his major milestones up until two years old, but there had always been something a little peculiar about my little guy. He spoke a few words here and there but nothing distinguishable to a non-parent. When Tristan was excited, he would jump up and down flapping his arms. And we just said to ourselves, “Oh, how cute! He loves to watch football!”

At three years old, when most parents begin preschool preparation, I was racking my brain telling myself, “I don’t think my little guy is ready. Actually, I know he is not ready.” My biggest concern and the anxiety he demonstrated the most was being around others – children, adults, and even family. Socially, I knew he was behind – way behind.

Outside of routine trips to the store, such as Costco, refusing to be separated by mommy and the check-out counter, or regular phrases such as “I’m scared” when approached by anyone other than an immediate family member– it was the sum of these situations that my husband and I realized we had to make something happen on our own.

I met with Tristan’s pediatrician. I should note that my concerns were not new to her either, but I pressed it further, and she supported our request. Our next visit was with a pediatric neurologist about an hour outside of town who instructed us to contact out local regional center. After some research of my own, I also decided to contact our local school district to get him tested for academic purposes since he was of school age.

The tests and evaluations were moving on the fast lane, so it was continuous evaluations for three or four weeks. Lucky me, and lucky for my son, he loved puzzles and games. It was like one party after another for a month. Final assessments came in both from the regional center and the school district within days of each other and both were in agreement that my son had PDD-NOS, known as Pervasive Developmental Disorder – Not Otherwise Specified. It was an extensively-wordy diagnosis with an awkward title but we now had an official diagnosis for my son.

In my son’s case, he exhibited most of the elements of being autistic. Because of the mildness of his characteristics he did not have autism, but he was on the Autism Spectrum Disorder. We shared the diagnosis with the school district and began discussing possible therapies to help Tristan begin moving in the right direction. They laid out two possible therapy sites both using applied behavioral analysis (known as ABA), and even set up visits for me to the two locations. After the visits, it was clear which would be the best fit for my son.

In order to move forward with the ABA at Applied Behavioral Consultants, ABC School, they had to conduct their own evaluation of Tristan to create a personalized program to fit his areas of needs. Over a period of a month, ABC School finally concluded their assessments and they began Tristan on a “slow start.” A “slow start” just meant he would begin half day and gradually add on an hour or so until he was able to manage an 8 a.m. -3:30 p.m. schedule five days a week.

Let me tell you mom and dad – the first week was, of course, the biggest transition. Which meant every morning; I would hear my little guy declare, “no school Mommy, no school.” For many days, I would do my best to console and reassure him that everything would be ok, even though I too had doubts. Not because I didn’t think we were making the right decision but more else that I too was scared as we were taking this journey together … blindly. As soon as I would drop him off at school, there was clinging to the legs, clothes, screaming, crying – some of that from mommy too. Yes, the first couple days I sobbed as I held my daughter’s hand walking to the car hearing my son screaming from inside the building.

But all that eventually ended and now almost five months into his ABA therapy – my Tristan is doing amazingly. He was evaluated for occupational therapy (it was recommended at the beginning of the school district evaluations but has improved drastically since then and so was deemed not needing occupational therapy at this time) and she had relayed that he was “the most developed child she had seen in the last 10 years.”

Just over this last year, I have come to realize more clearly how blessed and gifted that my son is. Because of his love to learn, he has exponentially grown in his academics even at four years of age. Now he loves school! In the fall, we enrolled him in a mainstream pre-kindergarten, so with the balance of both ABA therapy and pre-k he is doing wonderfully!

We are so grateful for the amazing specialists, teachers, doctors, and individuals who have had an impact, both big and small, in our lives to create this journey that we’ve been on with our son. Autism Spectrum Disorder has become a blessing in disguise and is a part of who my son is. And we wouldn’t have it any other way.

My Perspective articles discuss autism and the autism spectrum from a specific point of view. We understand that everyone with autism or caring for someone with the condition has a different experience. We aim to share as many of those viewpoints as we can. We’d love to hear from you. Please submit your proposal for editorial consideration to editors@myhealthteams.com. My Perspective articles don’t reflect the opinions of MyHealthTeams staff, medical experts, partners, advertisers, or sponsors.

All updates must be accompanied by text or a picture.
Juliet is a member of MyAutismTeam. Learn more about her here.

Related articles

I am very fortunate to have both of my children and a supportive husband. My kids have taught me...

My Perspective: Family Provides an Answer

I am very fortunate to have both of my children and a supportive husband. My kids have taught me...
"Part of the problem with “disabilities” is that the word immediately suggests an inability to...

My Perspective: The Hardest Part of Autism Isn’t Him – It’s Other People

"Part of the problem with “disabilities” is that the word immediately suggests an inability to...
Being diagnosed with Asperger’s Syndrome as an adult, I now realize that I have inadvertently...

My Perspective: Accidental Insults & Other Social Hazards Facing the Adult with Asperger’s

Being diagnosed with Asperger’s Syndrome as an adult, I now realize that I have inadvertently...
I am a stay-at-home mom, a wife, a lover of everything that sparkles and shines, a bit of a...

My Perspective: A Parent’s Story of Resilience

I am a stay-at-home mom, a wife, a lover of everything that sparkles and shines, a bit of a...
Just recently I was asked by a new friend, “How do you do it?” I responded somewhat perplexed. “...

My Perspective: How Do You Do It All?

Just recently I was asked by a new friend, “How do you do it?” I responded somewhat perplexed. “...
Often it’s said that people with autism don’t smile and don’t understand emotions. We know that...

My Perspective: My Son With Autism Has a Beautiful Smile!

Often it’s said that people with autism don’t smile and don’t understand emotions. We know that...

Recent articles

If you or a loved one is living with autism, you’re already aware of the impact it can have on...

Do You Want To Get Involved With Autism Awareness? Here’s How

If you or a loved one is living with autism, you’re already aware of the impact it can have on...
It takes a village to support living with a chronic condition like autism. Whether other...

Find Your People on MyAutismTeam

It takes a village to support living with a chronic condition like autism. Whether other...
You can never ask too many questions on MyAutismTeam. Other members are here to support you, help...

Share and Receive on MyAutismTeam

You can never ask too many questions on MyAutismTeam. Other members are here to support you, help...
A great first step on MyAutismTeam is to share your story with other members. Introducing...

Tell Your Story on MyAutismTeam

A great first step on MyAutismTeam is to share your story with other members. Introducing...
To determine how you can reduce your medical expenses, MyAutismTeam sat down with Susan Null of...

How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips

To determine how you can reduce your medical expenses, MyAutismTeam sat down with Susan Null of...
Elon Musk is the most recent celebrity to publicly discuss a diagnosis of Asperger syndrome. By...

What Elon Musk’s Autism Spectrum Disorder Diagnosis Does for the Rest of Us

Elon Musk is the most recent celebrity to publicly discuss a diagnosis of Asperger syndrome. By...
MyAutismTeam My autism Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close