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For me, the information was scattered everywhere and navigating insurance coverage. We spent so much time Googling and on phone calls, hoping we'd stumble onto something useful in flyers or through word-of-mouth, without ever knowing a clear picture of all the available treatment options. How about you—how are you finding the right care for your child? What have you found most useful?
I think it is hard to find a knowledgeable pediatrician. Also I think therapy in theory works a lot better than in practice. My experience is it is hard to get consistency even in the same company people are always coming and going in therapy fields.
Thank you @MyAutismTeam users... for sharing your experience!
Caring for our kiddos is always super taxing, when compared to NTs. But instead of using that "total energy" just on the experiences that have worked so far, we found it is good to use a percentage of that energy to try new things. For instance we never thought our kid could learn piano online, but seems like he can. We didn't think he could go to a regular high school, but with the right support, it seems like he can. So we keep trying, many fail 😁, and we have found that the "right care for our kids on the spectrum" keeps evolving.
Before my daughter was diagnosed she was going to a few pediatricians and none of them picked up on what she may have. So she would have meltdowns,etc until I finally found a pediatrician that knew she had Autism and suggested a Neurologist. So after going through everything w/my daughter I knew what to look for. So after finding the Neurologist at first he was in a practice with other Neurologists and my daughter had a seizure during that. It was after that that one of the Neurologists started their own practice and my daughter saw him regularly. He ended up diagnosing her and then diagnosed her w/ OCD at 11. It was a rough time until we got to that point.
We thought we did until they went out of Network with our Insurance 90,000 people are hurting now and alot of Special Needs Families
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