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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

He was born with potoki-lypski syndrome

September 22, 2025
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A MyAutismTeam Member

Tips for Potty Training a Child with PTLS
Be Patient and Consistent: Potty training will likely take longer and require a lot of patience, so maintain a consistent routine and positive reinforcement.
Consult with a Healthcare Team: Work closely with doctors, therapists (like occupational and physical therapists), and other specialists to understand your child's specific needs and challenges.
Adapt to Their Developmental Level: Break down potty training into very small, manageable steps that are appropriate for your child's current developmental abilities.
Address Other Medical Needs: Ensure any other underlying medical conditions, such as hypotonia or heart defects, are well-managed to support overall health and the ability to train.
Seek Support: Connect with other families who have children with PTLS or other chromosomal disorders for shared experiences and tips.

https://www.autismspeaks.org/expert-opinion/sev...

September 23, 2025
MyAutismTeam

How can I help my 5-year-old autistic child with potty training?

Potty training children with autism often takes longer due to communication challenges. Here are some helpful strategies that have worked for other parents:

• Use visual aids and "social stories" to explain the process
• Create consistent routines around Show Full Answer

How can I help my 5-year-old autistic child with potty training?

Potty training children with autism often takes longer due to communication challenges. Here are some helpful strategies that have worked for other parents:

• Use visual aids and "social stories" to explain the process
• Create consistent routines around bathroom visits
• Offer rewards for progress, even small steps
• Work closely with behavioral specialists if possible
• Practice patience - every child develops at their own pace Some parents have found success by:

• Making gradual transitions with multiple practice sessions
• Using the same scents or familiar elements from home bathrooms
• Breaking down the process into smaller, manageable steps
• Celebrating each achievement, no matter how small
• Working with occupational therapists who can create personalized strategies

Remember that this process may take time, but with consistency and patience, progress is possible. Many parents report eventual success even when the journey takes longer than expected.

September 22, 2025

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