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Just curious of different perspectives as I know some people do not approve of medication, this is for anyone who has tried a variety of adhd medications, my son is young and cannot swallow pills. We have now tried out 5 different types of adhd medication and all have had some sort of unpleasant downside (example suppressing appetite, burnout/more impulse and worse hyper activity) we have a amazing pediatrician and stop instantly on anything that caused any side effects. I am curious for anyone… read more
Liam my son gets liquid guanafacine compounded. I was hesitant to try this and my insurance doesn't cover compounded meds but thankfully this is the only on that has to be compounded. It helps him a lot and is worth the monthly cost even though some months it goes on the credit card. Some other people have said it makes their kid sleepy though. I was super hesitant to do meds for some years but they have probably been one of the most helpful things for him.
I started Adderall when I was 25, which is the age I was diagnosed with ADHD. I was later diagnosed with autism at almost 31. I've never had any difficulty swallowing pills, but I can imagine it might not be easy when one is still little! Adderall does work very well for me :)
Thank you for the replies ! We did try a liquid form, and a compact form actually two and both caused extreme issues, went to another 2 for mixing into food but they were terrible for suppressing appetite which is awful if you have food sensory issues as is in my mind.. im always worried about how much he eats so that was a instant no go . The worse was unable to control bladder/ extremely aggressive and impulses that were also on the extreme (liquid form) so far everything seems to work mildly for half the day. Pediatrician said he was in that small percentage to have these reactions. we did try changing doses through these periods but once we had days on end of these reactions mixed with like nonstop talking or like a loop stimming we stopped completely, he is doing well without and back to himself its just really hard in school.. I appreciate hearing others stories and yes he doesn't grasp the concept of swallowing pills took us a long time to be able to use childrens chewable for vitamins/flu and colds.
What has your experience been finding ADHD medication that works for your child with autism?
You're definitely not alone in this challenging journey. Many parents on MyAutismTeam describe similar experiences with trial and error when finding the right medication for their child with both autism and ADHD.
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