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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Columbus, OH

3-Year-Old almost four ASD nonverbal just been so overwhelming. We have to keep him and a onesie with pajama pants underneath or else he will dig in his diaper and smear it or eat it. And today he left terrible hickeys all over his arm. We have him in a generic special needs school, on a waiting list to get them in a autism specific School. I'm over his teachers. He came home with bruises one day this year on the inside of his legs and back of his legs. We had a meeting at school and expressed… read more

March 16
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A MyAutismTeam Member

My son is 15 and nonverbal. I don't have the answers but your feelings are valid and it's definitely a struggle finding the right placement for your child. Some years and teachers are going to be more of a struggle than others. I have been lucky enough that my son has had some teachers and paras who were a blessing and a good fit. Other years not so much. One teacher that my son was only in her class a month I had some big issues with. She kept confusing tantrums and meltdown. Sounds like to me you are doing everything right, getting communication and advocating for you son. A lot of teachers think they have the answers but really just want your child to be more convenient. The shoes and stuff sound like a sensory issue. My son still only wears shoes half the day a lot of the day. I know it's really frustrating to have your kid misunderstood and legitimately worrying about them. You are not a failure. Document your concerns with dates just in case. Trust your gut. Hang in there. It's not you or your effort that is lacking. It really is a fight to get adequate, appropriate support at times.

March 16 (edited)
A MyAutismTeam Member

Just two new ASD parents trying to figure stuff out and feeling overwhelmed and stressed. We feel like we're failing our son

March 16
MyAutismTeam

How can you advocate for your nonverbal son when his current school isn't meeting his needs?

First, your feelings are completely valid. Many parents on MyAutismTeam have fought similar battles with schools that don't understand their children's needs. The stress you're experiencing is real, and reaching out for support is Show Full Answer

How can you advocate for your nonverbal son when his current school isn't meeting his needs?

First, your feelings are completely valid. Many parents on MyAutismTeam have fought similar battles with schools that don't understand their children's needs. The stress you're experiencing is real, and reaching out for support is a sign of strength, not weakness.

Regarding the diaper digging and self-injurious behaviors like the hickeys on his arm - these are sensory-seeking behaviors that many children with autism experience. The onesie solution you're using is actually a common strategy parents use. Your approach shows you're being proactive and creative in meeting his needs.

For the school situation, here are some steps to consider:

Immediate actions:
- Document everything - bruises, communication issues, and any concerns about his care
- Request another meeting to discuss your son's specific sensory needs (like removing shoes, which may be a sensory issue rather than a shoe size problem)
- Ask about having an occupational therapist evaluate his sensory needs at school
- Inquire about a one-on-one aide, as some parents have successfully advocated for this support

Looking ahead:
- Continue pursuing the autism-specific school placement
- Consider whether moving to access better services might be an option, though many families have found success by persistently advocating within their current system

A MyAutismTeam member shared a similar experience: after fighting for adequate support, their son finally got a one-on-one aide at school, which made all the difference.

Your son's social exposure at school is valuable, but his safety and proper care are paramount. Trust your instincts as his parent - you know him best.

March 16

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