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Not easy to care for someone on own
Gravity of situations
Miss the share of responsibility it falls on everyone
Trying to navigate through Care Home situation of Son
Where they have been taking advantage of my son
But seeing he is in such safe home and safe with staff outside
Made me rethink the situation
I am trying to look after my son best I can
Just feels like they could try harder
The constant worry, of Care Home situation where you can only protect so far
Feeling the full burden of all but… read more
Taking care of yourself is a must. Researching different agencies and resources is also very important.
My son had been in one group home for 30 years before things became so bad that I had to overcome my fear of moving him to another group home. I am so glad I made that decision. He is being fed regularly and is well cared for—for the first time in a very long time. He is happy now.
The list of things that happened to him is unimaginable, and that is only what I know about. I now wonder what may have happened that I never knew about. My biggest regret is that I didn’t move him sooner.
Here are a few things I would recommend:
Document everything. Keep records of anything that concerns you, including dates, conversations, incidents, and the names of the people involved.
Go online and research agencies and resources that are available in your area. There may be more resources available than you realize.
If you can’t find an active parents’ group for parents of children with disabilities, consider starting one. They don’t have to have autism. There are many other disabilities, and there are parents who need support, too.
If caregivers are taking things that belong to your child, report it to the police. I did, and I also filed for a restraining order. I believe this is a must. People who steal from a disabled person have no business being around anyone who is disabled.
What you're carrying right now is enormous, and it makes complete sense that you're feeling alone and overwhelmed. Being a single parent navigating a care home situation — especially where your son has been taken advantage of — is one of the hardest things to face. Your love for him is so clear in every word you've written.
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