Autism

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Seizures?

Seizures?

A little while ago, my daughter was sitting on the sofa. Her eyes got really big ...you know, the way a person's eyes do when they have just been told something really shocking? I have seen her do this before, but never for this long (5-10 seconds). I have been concerned about the possibility of her having seizures for the last 2 years because of her age, and because about 2 years ago, she had an abnormal EEG. The last Neurologist we took her to said "a lot of kids with Autism have abnormal EEGs!". That… read more

A MyAutismTeam Member said:

Wow @A MyAutismTeam Member. That’s how my sons seizures started back in the day! Your description took me back in time! My guy was 6-7yrs old when they… read more

posted 33 minutes ago

Autism.Birthday Card Club

Autism.Birthday Card Club

Recently I saw a post about an "Autism Birthday card Club" on this site. Does anyone remember that, and have a link for it? Basically, you can put your child (teen) on a list to receive a birthday card, and also send birthday cards to other kids with Autism who are having birthdays. I thought it was a cool idea. I would enjoy seeing my daughter recieve a few b-day cards, and would love sending cards even more ! !

A MyAutismTeam Member said:

Yes, did you join the groups. We can then PM.
I Admin the Autism Birthday Club of Oklahoma but we are nationwide too.

posted 1 day ago

What's next after Abilify?!

What's next after Abilify?!

This question is for anyone who has a son or daughter (especially a teenager) who has been taking "Abilify". My 14 yr. old daughter has been taking Abilify for roughly 2 -3 years. At first, it really helped her. I really began noticing about a year ago that it didnt seem to be working anymore. This became even more obvious several months later after the doctor increased the dosage several times. What did your son or daughter take after discontinuing Abilify? Did it work, and for how… read more

A MyAutismTeam Member said:

This is an update on my answer my son has been on Abilify for several months. Today and yesterday the school called for me to come pick him up early… read more

posted 10 days ago

One to one aide at school

One to one aide at school

Would anyone reading this who has had any success getting a one to one aide for their son or daughter at school mind sharing how you were able to do this? Did you have to get an attorney? My daughter is not only nonverbal, but has behavior problems. I am not getting all of the info. I should be about what goes on at school because obviously they are understaffed. A doctor who my daughter once saw where we used to live gave us a written recommendation that she have a one on one aide at… read more

A MyAutismTeam Member said:

I seeked out to my pediatrician who in fact sent me over to other doctors and then once I got it on paper about behavioral problems then I was able to… read more

posted 26 days ago

Extreme Crotch pulling behavior in kids / teens with Severe Autism

Extreme Crotch pulling behavior in kids / teens with Severe Autism

This question is for parents with a daughter or son with Autism on the Severe side. Do any of you have a kid who does this when they are extremely upset ....or maybe they jump up all of the sudden, go to another chair and start whining, crying and screaming? Somehow the thought of seizures crosses my mind, although my daughter doesn't have any of the usual signs of seizures. Sure, it's possible I am missing something. She once had a therapist… read more

A MyAutismTeam Member said:

@A MyAutismTeam Member I will definitely ask the ABA people those questions. Thanks for what you said. It means a lot!

posted 3 months ago

Crotch pulling behavior

Crotch pulling behavior

Does anyone have any suggestions on how to block crotch pulling behavior? My 14 year old daughter does this, usually when she's upset. It seems to make her more upset, yet seems uncontrollable. If if I tell her to "stop" she will have a very long, hysterical screaming fit that will probably last for an hour or more.

A MyAutismTeam Member said:

Maybe suggest to her something she can do instead. Like “put your hand on your ears” or “keep your hands on your knees or above your waist”

posted about 1 month ago

Montessori

Montessori

Has a Montesori school been a good fit for your child with high functioning autism? Any feedback would be helpful. My daughter will be entering middle school and has dealt with bullying and social awkwardness.

A MyAutismTeam Member said:

Thank you for the feedback. Glad to hear you have had a good experience. Hoping for the same for my daughter. She will be starting the new school in… read more

posted about 2 months ago

Has anyone done a Due Process on their own without a lawyer or Mediation?

Has anyone done a Due Process on their own without a lawyer or Mediation?

We are looking into doing a Due Process after paying a lawyer for nearly two years $6,000 only to have her just release us withoiut doing any work not even contact a district that denied our daughter in 12th grade FAPE. We have evidence of at least 10 IDEA violations and about the same amount in state education laws. Too late for a citizen complaint and the district has ignored us for these past two years. Doing some research and looking… read more

A MyAutismTeam Member said:

@A MyAutismTeam Member, thank you for the support.. Read my recent post its sad. Also my former advocate from the local Arc here email me that someone… read more

posted about 2 months ago

Meds...how do you get your kiddos to take?? Help!

Meds...how do you get your kiddos to take?? Help!

This is my first post, so thanks in advance.

My 9 (almost 10) yo daughter is autistic, has ADHD, SPD, ODD, anxiety, and bladder dysfunction to name a few. I hate listing out her "labels" because that is not who she is; however, because of all of these, she has difficulty making sure to drink enough through the day AND does not use the bathroom properly...holds until too late and also wears pullups at night. She gets frequent UTIs (no structural issues… read more

A MyAutismTeam Member said:

Thank you CMart. The Vyvanse doesn't seem to be the problem because she just won't go and doesn't drink enough to have to go; however, I appreciate the… read more

posted 3 months ago

Virtual school for depressed 12 yr old in public middle school?

Virtual school for depressed 12 yr old in public middle school?

Hi all,
My daughter has mild autism but also severely depressed. Public school triggers her depression and anxiety and she's been in 5 different schools in about as many years. She just started middle school after being kicked out of the alternative school she was in. She's going downhill - doesn't care about anything, no bathing, no interest in previously enjoyable activities. It just kills me.
Now I'm considering taking her out to do virtual school… read more

A MyAutismTeam Member said:

I have Aspergers. I HATED school. Being different is always noticed. No matter how little the difference is. I had some friends but I didn't fully… read more

posted 4 months ago
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