I think that every child who has an autism diagnosis should go through genetic testing. There are syndrome-specific treatments that your child may need. For instance, my son has very low testosterone levels and has been taking testosterone, which has helped with mood swings, energy level, and focus issues.

I understand. My thought is that sometimes the treatment is inappropriate, because we are treating the wrong thing.

It is a blood test typically done by a geneticist Insurance will cover it. If your daughter had it there are approaches / therapies that are better than others. Medications that work better than others AND there is a biological reason why these kids respond the way they do. Knowing that helps you help them deal with life.

The other thing is if there are others in the family that are carriers it can affect them and/or their future generations AND since it is one chromosome that is the issue ... research is making progress! They have cured it in fruit flies and are eliminating symptoms in mice! Our hope is someday there will be a cure!

The good news is that Fragile X research is also helpful to the autism community at large so both populations benefit.

Yes, it matters, because if my Son has the gene/chromosone, then he'd want to know for his future, having his own kids someday.

I just personally can't jump on every band wagon out there. ABA is tried and true and works all the way through the spectrum from the high end to the low...Just my thoughts. At the end of the day my son is still my son with autism.