Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Brownsburg, IN

Wanting to know how many doctors you had to see prior to obtaining the "correct" diagnoses concerning your child. Did you find this process of obtaining a proper diagnoses frustrating for yourself and your child?

April 29, 2012
 · 
Reactions

Answer Summary

Members shared widely varied experiences in their journey to an autism diagnosis for their children, with some receiving answers quickly from... Read more

Members shared widely varied experiences in their journey to an autism diagnosis for their children, with some receiving answers quickly from the right specialist while others saw countless doctors and providers without ever feeling they got an accurate diagnosis. Several members emphasized the importance of going directly to a developmental pediatrician or neurologist rather than relying on general practitioners or outside evaluators, noting that proper documentation from specialists can unlock crucial services like SSI, insurance-covered therapies, and school support. A recurring theme was the exhausting frustration of navigating the system, with many families ultimately deciding to focus on getting their child help rather than chasing a perfect label, even when that meant paying out of pocket or foregoing insurance benefits.

A MyAutismTeam Member

i think that may be one of the many things that are different for everyone. good luck.

May 1, 2012
A MyAutismTeam Member

As parents, we had our suspicions regarding autism. Our first speech therapist agreed that our son was most likely somewhere on the spectrum. The school district where we used to live tested my son and placed him in special ed under a 'mental retardation' diagnosis. That could not have been further from the truth, but they said it was necessary for him to gain access to special ed until further testing could be done. Thankfully we moved to another state. The official diagnosis came from a doctor at our children's hospital's autism center.

April 29, 2012
A MyAutismTeam Member

There was too many drs to count. Yes, I was very frustrated. I found I got a diagnosis from a speech pathologist of all people before I actually got a formal diagnosis from a doctor. She knew him the best and worked with him the best and then the school district let her go. I did everything I could to get them to change their minds. I read your story and found a lot of similarities for high sensory issues. Michael's were taken away with brushing him daily and getting him OT services. Hope this helps.

April 29, 2012
A MyAutismTeam Member

Never saw a doctor per se..oldest son was assessed through mental health and my youngest has never been given a clinical diagnosis but has an IEP in place.

May 14, 2012
A MyAutismTeam Member

evak77 makes some really good points. When my husband and I decided not to take our son, Liam, for any more evaluations by different doctors, we had to give up any help that we may have been able to get from our insurance company or the state. Without an official diagnosis of Autism, our insurance company will not pay for any speech or occupational therapy so we have to pay out of pocket for those services even though we have testing results that show he has deficiencies in those areas.

May 11, 2012

Related Questions

View All
A MyAutismTeam Member asked a question 💭
Coral Springs, FL

A MyAutismTeam Member asked a question 💭
Audubon, PA