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Real members of MyAutismTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyAutismTeam Member asked a question 💭
Vancouver, WA

We recently received our results from the IgG test and it showed no gluten sensitivity but a very mild dairy sensitivity. Our doctor recommended taking her off dairy for a month and seeing if it helped. Has anyone had this test come back negative and had good results with the GFCF diet anyway? Is it worth it if she has no digestive issues?

January 10, 2013
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Answer Summary

Members strongly encouraged trying the GFCF diet even when allergy tests come back negative, with several sharing that their children showed... Read more

Members strongly encouraged trying the GFCF diet even when allergy tests come back negative, with several sharing that their children showed no gluten or dairy sensitivities on lab work yet experienced dramatic improvements in behavior, GI issues, and growth after eliminating casein or both. Many members recommended starting with dairy removal first since it's easier than gluten, trying different milk alternatives as a fun game to reduce resistance, and giving the diet a full trial period of at least six months before deciding if it's working. Popular dairy substitutes included coconut milk for drinking, Daiya cheese, and coconut milk yogurt, with members noting that hemp and sunflower milk are also good options and that gradual transitions work better than abrupt changes.

A MyAutismTeam Member

Yes - just slowly eliminate one thing at a time. Don't try to do it all at once or disaster! Best of luck! :D

January 10, 2013
A MyAutismTeam Member

Our test came back the same as yours. But our DAN doctor did pressure us to do GFCF anyhow. So we did. My son was very slightly calmer but not enough so to do the extra work.

btw, taking her off dairy is easy. It's the gluten that is hard. I think you should follow your doctor's suggestion.

January 10, 2013
A MyAutismTeam Member

Yay so glad you found a good milk substitute. Daiya is alright, much better melted or smeared on a sandwhich with something else to help buffer the taste. I actually prefer the coconut milk yogurt over any other kind of yogurt. I wish it was more affordable though. I tried to make it myself and failed, it's a little tricky to get the consistency right. If anyone has a tried and true recipe that actually works please pass it on to me (:

January 25, 2013
A MyAutismTeam Member

Have you tried Greek Yogurt! My boys love it and it doesn't seem to effect them! :D

January 24, 2013
A MyAutismTeam Member

Coconut milk! She didn't take to the almond at all! And at first we have had to mix coconut milk and cows milk to wean her off, but she's doing much better. Within the next few day I think we will be able to go completely dairy free. Yay!

January 23, 2013

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